54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis

CF Podcast 147: Never Giving Up with CF

 

Today, we meet Chris Peacock, a 26 year old native of Durham, UK who loves sports, poker, and spending time with his girlfriend and friends. 

- Chris suffered a collapsed lung in 2011. 

- He stepped out of his comfort zone and started dedicating time to exercise and now walks/runs 2 miles every day.

- Because of his health issues, he is on home oxygen. But after starting his exercise regime, he only uses it at night and hopes that one day, with continued fitness, he will not need it at all. 

- Chris says that his friends generally don't treat him any differently, but don't fully grasp how serious his disease is because he never lets it slow him down. 

 

 

This CF podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: ChrisPeacock.mp3
Category:podcasts -- posted at: 7:00 PM

In the first episode of the Own Your Feeding Tube video podcast series, this “How-To” video will show how I am able to use my feeding tube in different situations. I cover two different types of “feeds,” bolus feeds and nocturnal pump feeds. Bolus feeds are quick and easy and can get me as much as 750 calories in just a few minutes. My nocturnal feeds typically run for about 7 hours and give me anywhere from 1500-2500 calories depending on how much formula I use.

I also discuss how the feeding tube system is undergoing a change to the ENfit connector system. The current ENfit transitional set has been introduced and has created many questions for tube feeders. In 2016, feeding tubes and their accompanying pieces will complete the total transition to the ENfit connector system, which is designed to improve patient safety. Hopefully this video can help answer some of those questions.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

Direct download: Own_Your_Feeding_Tube_-_Gunnar_Esiason_-_Episode_1.mp4
Category:general -- posted at: 2:24 PM

Jonny Simpson

Managing a Career with Cystic Fibrosis

 

Today, you will meet Jonny Simpson, who is living, breathing, and succeeding with cystic fibrosis. 

- 28 years old

- From Penrith, Cumbria, UK

- His hobbies include bodybuilding, literature, and music.

- He is one of four boys. 

- He works in sports marketing and also personal training. 

 

 

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Direct download: johnnysimpson.mp3
Category:podcasts -- posted at: 5:00 PM

Meet Gary Reay - a 26 year old who grew up in Ireland with cystic fibrosis. 

 

- He plays soccer and boxes - generally trying to get to the gym at least 4 days a week with his friends - and also loves music and DJing. 

 

- After 19 years without an extended stay at the doctor's, Gary fell ill and was hospitalized for 6 weeks. 

- During that time, he lost a great deal of weight - leading him to the decision to get a feeding tube. 

 

- He uses his feeding tube every night and has seen a major change in his ability to retain weight and has much higher energy levels. 

 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

Direct download: GaryReay_FeedingTube.mp3
Category:podcasts -- posted at: 4:35 PM

Tim Wotton – Show Notes 

 

CF Podcast 145: Being a Father with CF

Tim Wotton 

 

Meet Tim Wotton, 44 years old, with CF.  Tim is from London, U.K.  He was an international junior field hockey player, works full time as a business consultant, and continues to play hockey and visit the gym regularly. 

 

Tim is a loving husband, father, and has two brothers, one of which is a twin.   Tim is loving life with his family and proving everyday that he is OWNING IT! 

 

  • Tim discusses CF and starting a family through in vitro fertilization.

 

  • It took Tim and his wife 6 IVF cycles to have their son Felix.

 

  • Tim’s son’s name Felix is Latin for lucky and Greek for happy.

 

  • Tim see’s all of his “tomorrows” in Felix

 

  • Tim has his own blog and book titled ‘How Have I Cheated Death?” 

 

 

  • Tim’s Quote: “Everyone needs to row their own boat, with CF”
Direct download: TimWooton_mixdown.mp3
Category:podcasts -- posted at: 4:10 PM

In this CF Podcast, we meet Bryan Warnecke – the young man with cystic fibrosis who was featured in the One Republic I Lived music video. He OWNS his disease every day by staying compliant and exercising. Active in various athletics, he is extremely passionate about ice hockey – a sport in which his team has won a state championship. Bryan’s goal is to become the first goalie with cystic fibrosis to play in the Olympics for Team USA.

This video podcast/vodcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

Direct download: BEF_Brian_W_Podcast_FINAL_YouTube.mp4
Category:general -- posted at: 1:54 PM

In this podcast you’ll see how I have taken to the coaching word, despite dealing with cystic fibrosis. Growing up, I was lucky enough to have some great coaches along the way. They always knew how far they could push me – just beyond the breaking point. I owe a lot of my character and success in life to my mentors, especially my coaches. They taught me invaluable life lessons away from sports that I one-day hope to pass on to my athletes. Success is something that is attainable for everyone, but not without hard work.

This video podcast/vodcast was made possible through an unrestricted, education grant to the Boomer Esiason Foundation from Chiesi.

Direct download: Gunnar_Esiason_-_Winning_with_Cystic_Fibrosis.mp4
Category:general -- posted at: 5:27 PM

“Exercising with CF Pre & Post Transplant” – Lar Brennan

Lar Brennan, 30 years old post transplant with CF, born and raised in Wexford, Ireland and was diagnosed at 9 months of age. Lar is an athlete, sports enthusiast, and passionate about fitness. Lar  received a double lung transplant on November 24th 2013.

Lar studied fitness in college and is now a fitness instructor. Since his transplant Lar does everything he can to raise awareness and empower people with CF to excel in everyday life. Lar is RELENTLESS in his quest to stay fit and beat CF. Lar believes that through the “power of exercise” he cannot fail…

Lar states:  “you need to stay positive and believe in yourself”

Lar’s quote: “Smile and wave…”

 

 

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: LarExerciseFINAL.mp3
Category:podcasts -- posted at: 6:00 PM

 

Meet Tim Sweeney, a 37-year-old personal trainer living, breathing, and succeeding with cystic fibrosis. Tim, who ran the NYC Marathon one year after his double lung transplant, and his wife Beth have had two children – Timmy and Harrison – using IVF. While there are not many resources for CF couples going through IVF, the Sweeneys want other people going through the same process to know that it can and does work; that people living with CF can successfully start a family.

his video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Direct download: Starting_a_Family_with_CF.mp4
Category:general -- posted at: 1:56 PM

Meet Colin (11) and Sean (9) Randles – brothers who are living, breathing, and succeeding with cystic fibrosis. The brothers are active in sports, including baseball and basketball, and are constantly playing games like cops and robbers and tag outside with friends.

They both agree that the best part of having a brother with CF is that they are always there to encourage each other, to hang out in the hospital, and to help each other get better.

This video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Direct download: Brothers_with_Cystic_fibrosis.mp4
Category:general -- posted at: 4:02 PM

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