Fri, 27 June 2014
“Traveling with Cystic Fibrosis Pre & Post Transplant” – Anna Modlin
Anna Modlin, 32 with CF, born and raised in the Bay area and had a double lung transplant on November 22nd 2010. Anna was diagnosed at 18 month of age, had a fairly normal childhood, hospitalized for the first time at 4 years of age and then not until junior high school. Anna graduated with a Masters in Counseling Psychology and her hobbies include cooking, spending time near water, and post transplant has become passionate about exercise. Anna, a true fighter, competes in the Transplant Games and gives back by volunteering in the CF community. Anna is LIVING BREATHING SUCCEEDING, passionate about living and “The hero of her own story…”
This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.
Thu, 17 April 2014
"You can expect to live a pretty long lifespan. So don’t waste it. Have some goals. Find your passion. And pursue it.” In this podcast, we meet Eric Hyman, a 36 year old who is living, breathing, and succeeding with cystic fibrosis. He shares a little bit of his background, interests, and what keeps him motivated to stay healthy and to keep a positive attitude even when things get difficult. He has learned to gradually share with people in his life about having CF – from friends to business and work associates. One of his favorite pastimes is playing music – which helps him keep his airways clear and his lungs healthy.
This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis Pharmaceuticals Corporation.
Tue, 8 April 2014
Lindsay Shipp:The Power of Exercise and Nutrition with CF
LINDSAY SHIPP, 30 years old from Madison, Wisconsin currently living in San Diego, CA for the past 7 years and studied classical ballet for over 20 years. Lindsay’s hobbies include running, spinning, heated yoga, and nutrition.
This CF Podcast is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation.
Wed, 26 March 2014
Category:general -- posted at: 7:26 PM
Thu, 27 February 2014
In this episode, we talk to Karen Vega from New York, who is 33 years old with CF, happily married and a mother of 3 always “on the go…” exercise enthusiast, and training for a ½ marathon. Karen never let CF get in the way of her living life to the fullest and keeping her dreams alive!
· TOBI Podhaler is a dry-powder treatment delivered in a disposable device.
· TOBI Podhaler is taken twice a day, and needs little setup and cleanup.
· The Podhaler is a great On-the-go device
· The unit does not require disinfection, refrigeration, power source, or batteries
· Administered in 2 – 7 Minutes (in clinical trials)
· 12.44% improvement in lungs · Helps to fight Psudomonas aeruginosa
· 64% reduction in percentage of hospitalizations
· 15% less need for intravenous (IV) antipseudomonal antibiotics
Wed, 15 January 2014
Jerry Cahill, a man in his late 50s, living, breathing, and succeeding with cystic fibrosis shares his journey through a double lung transplant. The drive behind his success is his ability to make the fight to live a competition and his gratefulness to his donor - living well and never giving up is his way to pay tribute to the person who lost his life so that Jerry could live.
Organ Donation Facts:
Despite continuing efforts at public education, misconceptions and inaccuracies about donation persist. Learn these facts to help you better understand organ, eye and tissue donation:
Fact: Anyone can be a potential donor regardless of age, race, or medical history.
Fact: All major religions in the United States support organ, eye and tissue donation and see it as the final act of love and generosity toward others.
Fact: If you are sick or injured and admitted to the hospital, the number one priority is to save your life. Organ, eye and tissue donation can only be considered after you are deceased.
Fact: When you are on the waiting list for an organ, what really counts is the severity of your illness, time spent waiting, blood type, and other important medical information, not your financial status or celebrity status.
Fact: An open casket funeral is possible for organ, eye and tissue donors. Through the entire donation process the body is treated with care, respect and dignity.
act: There is no cost to the donor or their family for organ or tissue donation.
To learn more about lung transplantation and organ donation, click here.
Category:general -- posted at: 4:04 PM
Mon, 16 December 2013
Today, you will meet Stephen Bell, a 30 year old with cystic fibrosis, who is an avid runner and exercise enthusiast. Stephen has run 8 marathons in the last 5 ½ years, and attributes his health to his commitment to staying active. Running – something that was once used as a punishment in other sports – has become something that makes him feel free, and gives him time away from everything when he is feeling overwhelmed.
This video podcast/vodcast was made possible through the promotional support and commitment from AbbVie to the CF community.
Direct download: Giving_Back_to_the_CF_Community_through_Exercise_Awareness.m4v
Category:general -- posted at: 9:23 PM
Mon, 9 December 2013
In this video, Jerry discusses several methods of airway clearance that help people with cystic fibrosis avoid lung infections. Jerry finds the following methods extremely helpful in keeping his lungs clear: the vest, the flutter, the power lung, sinus irrigation, the percussor, and last, but certainly not least, staying active and exercising regularly.
This podcast has been made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.
Fri, 22 November 2013
In July 2013, runners gathered for the third consecutive year for a race Central Park in New York City. Many of those runners were there to support the cystic fibrosis community, and they shared with us their many reasons for running. From lung health to stress relief, emotional well-being to freedom from their disease, all of these people have at least one thing in common: they run to fight cystic fibrosis.
This podcast has been made possible through an unrestricted educational grant from VERTEX to the Boomer Esiason Foundation.
Thu, 8 August 2013
I Believe… in Compliance
The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.
In this podcast, four people who are at different stages in their fight against CF share what the word "compliance" means to them and to their health. The common belief in this video is that compliance prolongs the life of anyone living with cystic fibrosis.
This podcast was made possible by a patient education grant from Novartis Pharmaceuticals Corporation.