54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis

In this CF Podcast, we meet Bryan Warnecke – the young man with cystic fibrosis who was featured in the One Republic I Lived music video. He OWNS his disease every day by staying compliant and exercising. Active in various athletics, he is extremely passionate about ice hockey – a sport in which his team has won a state championship. Bryan’s goal is to become the first goalie with cystic fibrosis to play in the Olympics for Team USA.

This video podcast/vodcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

Direct download: BEF_Brian_W_Podcast_FINAL_YouTube.mp4
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In this podcast you’ll see how I have taken to the coaching word, despite dealing with cystic fibrosis. Growing up, I was lucky enough to have some great coaches along the way. They always knew how far they could push me – just beyond the breaking point. I owe a lot of my character and success in life to my mentors, especially my coaches. They taught me invaluable life lessons away from sports that I one-day hope to pass on to my athletes. Success is something that is attainable for everyone, but not without hard work.

This video podcast/vodcast was made possible through an unrestricted, education grant to the Boomer Esiason Foundation from Chiesi.

Direct download: Gunnar_Esiason_-_Winning_with_Cystic_Fibrosis.mp4
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“Exercising with CF Pre & Post Transplant” – Lar Brennan

Lar Brennan, 30 years old post transplant with CF, born and raised in Wexford, Ireland and was diagnosed at 9 months of age. Lar is an athlete, sports enthusiast, and passionate about fitness. Lar  received a double lung transplant on November 24th 2013.

Lar studied fitness in college and is now a fitness instructor. Since his transplant Lar does everything he can to raise awareness and empower people with CF to excel in everyday life. Lar is RELENTLESS in his quest to stay fit and beat CF. Lar believes that through the “power of exercise” he cannot fail…

Lar states:  “you need to stay positive and believe in yourself”

Lar’s quote: “Smile and wave…”

 

 

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: LarExerciseFINAL.mp3
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Meet Tim Sweeney, a 37-year-old personal trainer living, breathing, and succeeding with cystic fibrosis. Tim, who ran the NYC Marathon one year after his double lung transplant, and his wife Beth have had two children – Timmy and Harrison – using IVF. While there are not many resources for CF couples going through IVF, the Sweeneys want other people going through the same process to know that it can and does work; that people living with CF can successfully start a family.

his video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Direct download: Starting_a_Family_with_CF.mp4
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Meet Colin (11) and Sean (9) Randles – brothers who are living, breathing, and succeeding with cystic fibrosis. The brothers are active in sports, including baseball and basketball, and are constantly playing games like cops and robbers and tag outside with friends.

They both agree that the best part of having a brother with CF is that they are always there to encourage each other, to hang out in the hospital, and to help each other get better.

This video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Direct download: Brothers_with_Cystic_fibrosis.mp4
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Wise words given to CF mom, Whitney Randles, from her boys’ grandfather: “Special children are only given to special people.”

Pat Randle: “My biggest fear is that I outlive my children – simple as that; that shouldn’t be. And I don’t want that to happen. That’s where it begins and ends with the fear. I don’t want that to happen.”

* * *

In this podcast, CF parents Pat and Whitney Randles, discuss the challenges they have faced while raising two young sons with cystic fibrosis. While most parents face the normal ups and downs of learning to raise kids, the Randles had additional challenges when they were told that they oldest son, Colin (now 11), had CF. When their second son, Sean (now 9), was born with CF – they faced an additional set of trials, balancing schedules and medications, among other things.

The Randles are constantly learning the best way to raise their kids. They depend on one main phrase every day: “Do CF life first, then do your normal life.” By constantly challenging their boys to stay compliant and healthy, they are instilling skills both Colin and Sean will hold onto into the future.

This CF video podcast was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.

Direct download: BEF_PODCAST_PARENTING_CF-HD.mp4
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Gunnar Esiason, 23 years old and living with cystic fibrosis, graduated from Boston College in May 2013. Originally planning to attend law school, he realized that he had driven himself into the ground during undergrad – forcing him to alter his plans.

Returning home to live with his parents, Gunnar decided to look into coaching high school football and hockey. After learning of an opening at his alma mater, he started work and immediately fell in love with the job and watching kids learn and succeed.

Today, Gunnar has found a balance that allows him to put his health and compliancy first while enjoying this new post-college, career phase of his life.

This video podcast/vodcast was made possible through an unrestricted education grant from Chiesi.

Direct download: undefined.
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“CF and Exercise with Low FEV’s” – Lizz Kaup

Lizz Kaup, 34 with CF, born and raised in California and currently living in Tecumseh, Oklahoma. Lizz was diagnosed at age 3 and is currently working as a senior social worker at a medium-secure juvenile facility and recently completed her program at East Central University.

Lizz is active in her church and loves to travel. Lizz is always on the lookout for her next adventure. Due to her low FEV’s, Lizz exercises with oxygen and is RELENTLESS in her quest to stay fit and beat CF. Lizz has found that through the “power of exercise” she cannot fail with CF. 

  • Lizz was hospitalized a lot growing up between the ages of 13 - 18 but states “My parents were amazing and taught independence”.
  • Lizz started to exercise consistently due to the decline of her lung functions to help delay a double lung transplant. Lizz made a commitment to exercising by doing treadmill for 30 minutes, 7 days/week. “It was difficult but I noticed slow improvement in my strength.
  • Lizz currently does weight training, treadmill, and biking. 
  • “For me, the rewards of exercise include muscle tone, breathe a little better, and more energy”.
  • Lizz did her first 5K event, the Dirty Thirty. “It was a mud run (with obstacles) and I did it with my oxygen tank”.
  • “Coping with CF is not always easy… but I maintain a heart of gratitude, thinking of the good things in life and the great support of my family” states Lizz.
  • Lizz’s Tips:
    • “Just start”
    • “Have a support staff”
    • “Faced with challenges… ALWAYS look for the silver lining”
    • “ Continue to fight!” 
    • “Life is an Adventure… GO for it!”

 

 

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

Direct download: LizKaup.mp3
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Meet Beau Rich – a 23-year-old filmmaker, actor, writer, musician, and traveler living, breathing, and succeeding with cystic fibrosis.

After a series of tests and hospital stays, Beau was diagnosed with CF at six months old. By the age of 11, he took up skateboarding and discovered that it was a fun way to stay in shape and clear his lungs. Today, Beau makes a daily effort to stay healthy by staying compliant and exercising so that he can live life however he wants. By using his portable vest and treatments, he is able to stay healthy on the go and is able to keep his body moving so that he can enjoy every single day.

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

Direct download: Beau_Podcast-HD.mp4
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The Boomer Esiason Foundation (BEF) is launching its newest Team Boomer event series, Bike to Breathe, which kicks off with Jerry and Em’s Great CF Adventure – a journey that will take the two cystic fibrosis (CF) advocates on a 500-mile bike ride from Cary, N.C. to Baltimore, M.D.

Jerry Cahill and Emily Schaller will start their ride from the Chiesi USA headquarters, located at 1255 Crescent Green, Cary, NC 27518, at 10 a.m. on Monday, Sept. 15, 2014.

The Team Boomer event series encourages people with cystic fibrosis and their families to stay active and exercise in order to stay healthy.

Cahill is a 58-year-old CF patient and double lung transplant survivor who is living proof that an active, healthy lifestyle positively affects his quality of life. He is currently BEF’s CF Ambassador, volunteering for the Foundation to help the CF community in the here and now.

Schaller is a 32-year-old CF patient who started cycling, running, and exercising in 2007, when she was introduced to Cahill’s story, because she was “sick of being sick.” At the same time, she started the Rock CF Foundation to heighten public awareness about her disease and to raise money for research.

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Direct download: Jerry_and_Em_Exercise.mp4
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