54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis

In this podcast, we hear from 24-year-old, Gunnar Esiason. He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise. Gunnar also points out that airway clearance is one of the most important things he does to stay healthy and – outside of using a vest, percussor, and exercising – that he uses a machine called a frequencer. Check out the video to learn more!

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: Frequencer.mp4
Category:general -- posted at: 1:13pm EST

“I felt guilty I didn’t have the disease.”

To Sydney Esiason, there is no bigger duty of a sibling than to be the other’s biggest fan and supporter. While Gunnar has been in the spotlight for the majority of his life because of cystic fibrosis, Sydney has been there right beside him, cheering him on – quite literally. The duo attended the same schools all the way through Boston College. Tune in to hear Sydney tell her story of growing up as a sister to someone with cystic fibrosis.

This podcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

Direct download: SYDNEY_FINAL-HD.mp4
Category:general -- posted at: 1:43pm EST

CF Podcast 153: Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

Jen Eisenmann Show Notes

 

CF Podcast 153: CF, Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

 Today we meet Jen Eisenmann, a 44-year-old living, breathing, and succeeding with cystic fibrosis. Diagnosed at 12 months old, Jen grew up similarly to most other kids, other than having to take enzymes and do occasional chest percussions. Because her parents had never heard of cystic fibrosis, they were wary of her participation in athletics, and so directed her in the direction of music as an extracurricular activity.

*      At 22 years old, Jen visited a CF clinic for the first time.

*      She had, admittedly, been naïve about the seriousness of CF and the need to care for herself.

*      Her new doctors told her she had to change her ways to survive.

 Listen in to the latest CF podcast to hear Jen’s entire story.

 This CF Podcast was made possible through an unrestricted, education grant from Genentech to the Boomer Esiason Foundation.

Direct download: Jen_Eisenmann_mixdown.mp3
Category:podcasts -- posted at: 5:15pm EST

CF Podcast 152: Amy Whelan Interview - Anxiety with Cystic Fibrosis

CF Podcast 152: Anxiety with Cystic Fibrosis

 

Today, you will meet Amy Whelan, a 21 year old from Dublin, Ireland. She was diagnosed at two weeks old, when her identical twin was extremely ill.

*      Amy is studying anthropology and sociology in college.

     She enjoys reading, writing, and watching movies.

*      Growing up, she did not have to do as many lung-based treatments. Now she has had to adjust to adding those treatments to her medical regime.

 

 

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: whelan_mixdown.mp3
Category:podcasts -- posted at: 1:01pm EST

CF Podcast 151: Jessie Ennis Interview - Self Management and Pursuing Goals with Cystic Fibrosis

CF Podcast 151: Self Management and Pursuing Goals with Cystic Fibrosis

 

Today we meet Jessie Ennis, a 22 year old with CF who was born and raised in Dublin, Ireland. Because of a family history of the disease, Jessie's parents had her tested for CF before she was six weeks of age. In spite of CF, she had a relatively normal childhood - growing up with her brother and a series of foster kids - and remained healthy through high school. 

 

Now Jessie: 

 

  • studies health and society in college,
  • is currently visiting and working a summer job in San Diego,
  • and has taken up surfing and skiing. 

To learn more about Jessie and the ways she manages her disease while pursuing her goals, please listen to her podcast here [insert link]. 

 

 

This educational podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: ennis_mixdown.mp3
Category:podcasts -- posted at: 8:00am EST

“Comfort With Your Feeding Tube”

The fourth episode of the Own Your Feeding Tube video podcast series discusses some of the social questions that tube feeders, or potential tube feeders, may have when it comes to a new feeding tube. Obviously, it’s a pretty noticeable device. I think the social hurdle was really the biggest one that I had to overcome. With that being said, once I realized the benefits of the feeding tube, especially in my life, it was an easy hurdle to get passed. Here, the message is that I really want you to own it. What is it? The feeding tube. If the feeding helping make your life easier, then don’t worry about what it looks like. You never know where it will lead you.

Direct download: Own_Your_Feeding_Tube_-_Gunnar_Esiason_-_Episode_4.mp4
Category:podcasts -- posted at: 3:00pm EST

CF Podcast 150: Sean Sullivan, Being Compliant With Cystic Fibrosis

CF Podcast 150: Sean Sullivan, Being Compliant with Cystic Fibrosis

 

Today we meet 40 year old, Sean Sullivan, who was diagnosed with CF at 16 months after his parents grew concerned about his chronic cough and lack of weight gain. Sean is the oldest of six kids and is the only person in his family who has CF.

ï      He grew up extremely active – playing basketball, baseball, and swimming.

ï      His doctors encouraged his parents to treat him the same as their other children.

ï      From a young age, he learned to be not only medically compliant but also stick to an active lifestyle.

ï      Now 6 months post transplant, Sean is even more vigilant than ever while taking care of his disease and its new challenges.

 

 

This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Direct download: sullivan_mixdown.mp3
Category:podcasts -- posted at: 10:33am EST

“What Can I expect From My New Feeding Tube?”

The second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed.

I agree, it can seem like a lot of work and even a little scary at first, but I can honestly tell you that living a full, healthy life with both CF and feeding tube can be done. Here, you will see what I have done to overcome any challenges that a feeding tube may present.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Services.

 

“Normalcy with a Feeding Tube”

In the third episode of the Own Your Feeding Tube video podcast series, you will see how I have been able to maintain my physically active lifestyle. Prior to getting my feeding tube placed, I had a fear that my life would change drastically. It did, but for the better. My health drastically improved, plus I saw my energy and activity level sky rocket. I was in the gym and on the ice only 6 weeks after surgery. While the feeding tube does require a little extra work outside of the realm of normal cystic fibrosis responsibilities, I am more than willing to give a little hard work for such incredible gains.

This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

Category:general -- posted at: 3:48pm EST

CF Podcast 149: Exercising with Cystic Fibrosis - Featuring Jillian McNulty

CF Podcast 149: Exercising with Cystic Fibrosis featuring Jillian McNulty

 

Today, we meet Jillian McNulty, a 38 year old woman living, breathing, and succeeding with cystic fibrosis in Ireland. Growing up as one of four kids, she is outgoing and constantly challenges herself to stay on top of her disease. 

- During her childhood, Jillian was never hospitalized for an extended length of time. 

- In her early thirties, Jillian's health started to decline, and so she made the decision to push herself with exercise. 

- After seeing an ad for a marathon while she is in the hospital, Jillian decided to sign up and start training. 

- Since then, she continues to push herself by running, walking, and cycling on a regular basis and by competing in races. 

 

 

This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

Direct download: McNulty_mixdown.mp3
Category:podcasts -- posted at: 12:54pm EST

CF Podcast 148: Never Giving Up with CF - Featuring Chris Peacock

CF Podcast 148: Never Giving Up with CF

 

Today, we meet Chris Peacock, a 26 year old native of Durham, UK who loves sports, poker, and spending time with his girlfriend and friends. 

- Chris suffered a collapsed lung in 2011. 

- He stepped out of his comfort zone and started dedicating time to exercise and now walks/runs 2 miles every day.

- Because of his health issues, he is on home oxygen. But after starting his exercise regime, he only uses it at night and hopes that one day, with continued fitness, he will not need it at all. 

- Chris says that his friends generally don't treat him any differently, but don't fully grasp how serious his disease is because he never lets it slow him down. 

 

 

This CF podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: ChrisPeacock.mp3
Category:podcasts -- posted at: 3:00pm EST

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