54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis

Adriane De Moerloose

 

Adriane is married with 3 children, and currently resides in North Carolina. She and her husband are the happy parents of 3 children. Alexis 7, Andrew 4.5, with CF, and Olivia who passed away 6 years ago from a rare heart disease. She currently enjoys running, biking, and hiking with her family. She also enjoys writing, listening to music and working out at the gym. She believes it is important to have inner strength and always be positive.

 

  • Adriane and her husband, Peter, believed that they needed to “buckle down” and get ready for another battle when they found out their son, Andrew, was diagnosed with CF.
  • She relied a lot on close friends and family. They also reached out to other parents who have children with CF.
  • She focused on one thought: “How can I raise my child while he will be dealing with a chronic illness everyday”
  • Andrew started to question his CF when he was 2.5-3 years old.
  • Andrew’s treatments are “Non-Negotiable”
  • He has begun teaching his peers about his CF and his treatments. He is a 3 year old CF Advocate

 

To learn more about Adriane and the ways she manages her mental well being, please listen to her podcast. 

  

This educational podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Direct download: A_De_Moerloose_FINAL.mp3
Category:general -- posted at: 12:18pm EST

 

In this podcast we meet Will Schlucter, a 26 year-old CF patient who owns his own gym, Will Power Strength and Conditioning. After years during his youth of taking breaks during athletics, Will decided, as an adult, to push through his coughing, expand his limits, and leave his comfort zone while working out - which led to a love of training himself and other people.

This video podcast/vodcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

Category:general -- posted at: 9:38am EST

 

Today, you will meet Brayden Merrill, a 14-year-old with cystic fibrosis who stays healthy by playing soccer, track, and cross country. For someone so young, he is very open about his disease and uses it as a reason to train harder – uses it to his advantage as a motivation. His younger brother Noah (8) also has CF, and Brayden does everything he can to be a good role model and to teach him how to stay healthy.

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Category:general -- posted at: 9:42am EST

 

Today, we meet Sabrina Walker who is 30 years old living, breathing, and succeeding with cystic fibrosis in Anchorage, Alaska. Growing up, her parents encouraged her to stay active and play sports – not allowing her to make excuses about why CF would stop her. Sabrina’s mom is the person who sparked her love of running in order to keep her lungs clear. Not only does Sabrina battle CF on a day-to-day basis, she is also a cancer survivor, wife, and mother who keeps a positive attitude through it all.

This video podcast/vodcast was made possible through an educational grant from Gilead to the Boomer Esiason Foundation.

 

Category:general -- posted at: 10:05am EST

CF Podcast 160: Callie Deanda Jumping the Fear With CF

CF Podcast: Callie Deanda

Name: “Jumping the Fear with CF

Sponsor: Genentech

 

Callie Deanda,: 

  • 20 years old with CF, athletic, attending college, and from Tennesse
  • Hobbies include soccer (plays on varsity team), hiking, cross-stitching
  • Watching Buffy & Vampire Slayer with friends and Callie is a huge Sporting Clays fan
  • Callie believes that we all need to “jump the fear” with CF.you never know what’s going to happen in life… big fear of the unknown things just happen so ENJOY!
  • Family “24 hour rule” get over things in life and move forward…
  • Callie and her family believe you should not get stuck in CF.
  • CF opens doors!
  • Callie loves life and always finds joy in life
  • Callie’s advice… “We all need people in life, we cannot do on our own

 

This podcast was made possible from an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: Callie_Deanda_Interview.mp3
Category:podcasts -- posted at: 12:34pm EST

 

In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Medical Center have become like extended family – a group of caring individuals who tirelessly work to make sure he has a long, successful life.

This video podcast/vodcast was made possible through an unrestricted educational grant made from Gilead to the Boomer Esiason Foundation.

Direct download: Podcast_158.mp4
Category:general -- posted at: 10:47am EST

 

In this podcast, we meet some of “Jerry’s kids” – the young athletes he dedicates a great deal of his time to coaching in the sport of pole vault. Just as in his professional life, Jerry runs a tight ship… something his kids would heartily confirm. And it is that passion and dedication that inspires these athletes to work harder and longer than anyone else on the track. In turn, that hard work continues to inspire Jerry in his own life living with cystic fibrosis.

This video podcast/vodcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

Category:general -- posted at: 10:10am EST

 

In this podcast, Mary Cahill – mother to Jerry Cahill – sits down to discuss what it was like raising a CF child among her other “normal” children. She shares the story of his diagnosis and the subsequent decision that she and her husband made to treat Jerry the exact same as his siblings – encouraging him to play sports and get out and be as active as possible. This decision led Jerry to live an active, healthy, and successful life, enabling him to get to where he is today.

This educational video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Category:general -- posted at: 10:21am EST

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come along with any transplanted organs – and also reminds us that a transplant is not a cure; that he still has cystic fibrosis.

This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

Direct download: Jerry_-_4_year_tx_anniversary.mp4
Category:general -- posted at: 9:31am EST

In this podcast, we hear from 24-year-old, Gunnar Esiason. He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise. Gunnar also points out that airway clearance is one of the most important things he does to stay healthy and – outside of using a vest, percussor, and exercising – that he uses a machine called a frequencer. Check out the video to learn more!

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: Frequencer.mp4
Category:general -- posted at: 1:13pm EST

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