54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis
CF Podcast 160: Callie Deanda Jumping the Fear With CF

CF Podcast: Callie Deanda

Name: “Jumping the Fear with CF

Sponsor: Genentech

 

Callie Deanda,: 

  • 20 years old with CF, athletic, attending college, and from Tennesse
  • Hobbies include soccer (plays on varsity team), hiking, cross-stitching
  • Watching Buffy & Vampire Slayer with friends and Callie is a huge Sporting Clays fan
  • Callie believes that we all need to “jump the fear” with CF.you never know what’s going to happen in life… big fear of the unknown things just happen so ENJOY!
  • Family “24 hour rule” get over things in life and move forward…
  • Callie and her family believe you should not get stuck in CF.
  • CF opens doors!
  • Callie loves life and always finds joy in life
  • Callie’s advice… “We all need people in life, we cannot do on our own

 

This podcast was made possible from an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: Callie_Deanda_Interview.mp3
Category:podcasts -- posted at: 12:34pm EDT

 

In this podcast, we hear from Jerry’s CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Medical Center have become like extended family – a group of caring individuals who tirelessly work to make sure he has a long, successful life.

This video podcast/vodcast was made possible through an unrestricted educational grant made from Gilead to the Boomer Esiason Foundation.

Direct download: Podcast_158.mp4
Category:general -- posted at: 10:47am EDT

 

In this podcast, we meet some of “Jerry’s kids” – the young athletes he dedicates a great deal of his time to coaching in the sport of pole vault. Just as in his professional life, Jerry runs a tight ship… something his kids would heartily confirm. And it is that passion and dedication that inspires these athletes to work harder and longer than anyone else on the track. In turn, that hard work continues to inspire Jerry in his own life living with cystic fibrosis.

This video podcast/vodcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

Category:general -- posted at: 10:10am EDT

 

In this podcast, Mary Cahill – mother to Jerry Cahill – sits down to discuss what it was like raising a CF child among her other “normal” children. She shares the story of his diagnosis and the subsequent decision that she and her husband made to treat Jerry the exact same as his siblings – encouraging him to play sports and get out and be as active as possible. This decision led Jerry to live an active, healthy, and successful life, enabling him to get to where he is today.

This educational video podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Category:general -- posted at: 10:21am EDT

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come along with any transplanted organs – and also reminds us that a transplant is not a cure; that he still has cystic fibrosis.

This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

Direct download: Jerry_-_4_year_tx_anniversary.mp4
Category:general -- posted at: 9:31am EDT

In this podcast, we hear from 24-year-old, Gunnar Esiason. He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise. Gunnar also points out that airway clearance is one of the most important things he does to stay healthy and – outside of using a vest, percussor, and exercising – that he uses a machine called a frequencer. Check out the video to learn more!

This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: Frequencer.mp4
Category:general -- posted at: 1:13pm EDT

“I felt guilty I didn’t have the disease.”

To Sydney Esiason, there is no bigger duty of a sibling than to be the other’s biggest fan and supporter. While Gunnar has been in the spotlight for the majority of his life because of cystic fibrosis, Sydney has been there right beside him, cheering him on – quite literally. The duo attended the same schools all the way through Boston College. Tune in to hear Sydney tell her story of growing up as a sister to someone with cystic fibrosis.

This podcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

Direct download: SYDNEY_FINAL-HD.mp4
Category:general -- posted at: 1:43pm EDT

CF Podcast 153: Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

Jen Eisenmann Show Notes

 

CF Podcast 153: CF, Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann

 Today we meet Jen Eisenmann, a 44-year-old living, breathing, and succeeding with cystic fibrosis. Diagnosed at 12 months old, Jen grew up similarly to most other kids, other than having to take enzymes and do occasional chest percussions. Because her parents had never heard of cystic fibrosis, they were wary of her participation in athletics, and so directed her in the direction of music as an extracurricular activity.

*      At 22 years old, Jen visited a CF clinic for the first time.

*      She had, admittedly, been naïve about the seriousness of CF and the need to care for herself.

*      Her new doctors told her she had to change her ways to survive.

 Listen in to the latest CF podcast to hear Jen’s entire story.

 This CF Podcast was made possible through an unrestricted, education grant from Genentech to the Boomer Esiason Foundation.

Direct download: Jen_Eisenmann_mixdown.mp3
Category:podcasts -- posted at: 5:15pm EDT

CF Podcast 152: Amy Whelan Interview - Anxiety with Cystic Fibrosis

CF Podcast 152: Anxiety with Cystic Fibrosis

 

Today, you will meet Amy Whelan, a 21 year old from Dublin, Ireland. She was diagnosed at two weeks old, when her identical twin was extremely ill.

*      Amy is studying anthropology and sociology in college.

     She enjoys reading, writing, and watching movies.

*      Growing up, she did not have to do as many lung-based treatments. Now she has had to adjust to adding those treatments to her medical regime.

 

 

This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: whelan_mixdown.mp3
Category:podcasts -- posted at: 1:01pm EDT

CF Podcast 151: Jessie Ennis Interview - Self Management and Pursuing Goals with Cystic Fibrosis

CF Podcast 151: Self Management and Pursuing Goals with Cystic Fibrosis

 

Today we meet Jessie Ennis, a 22 year old with CF who was born and raised in Dublin, Ireland. Because of a family history of the disease, Jessie's parents had her tested for CF before she was six weeks of age. In spite of CF, she had a relatively normal childhood - growing up with her brother and a series of foster kids - and remained healthy through high school. 

 

Now Jessie: 

 

  • studies health and society in college,
  • is currently visiting and working a summer job in San Diego,
  • and has taken up surfing and skiing. 

To learn more about Jessie and the ways she manages her disease while pursuing her goals, please listen to her podcast here [insert link]. 

 

 

This educational podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

Direct download: ennis_mixdown.mp3
Category:podcasts -- posted at: 8:00am EDT

Creative Commons License
This work is licensed under a Creative Commons Attribution-NoDerivs 2.5 License.