Category Archives : Blog

07

Aug

    No matter who you are, your life is full of options. Remember that. It’s crucial, for without options, we lose hope.   I talk a lot in my podcasts, blogs, and social media posts about running and cycling. READ MORE

25

Jul

Tenacity

Tenacity: the “mental or moral strength to resist opposition, danger, or hardship” (http://www.merriam-webster.com). Or in my own words, tenacity is plain old stubbornness and the refusal to give up. I grew up with this attitude and it set me on READ MORE

18

Jul

    In this installment of Jerry Unplugged: A Cystic Fibrosis Podcast, Jerry sits down with Chris McEwan and Mike Hill from the Boomer Esiason Foundation as they prepare and plan for Bike 2 Breathe 2018: The Heartland of America. READ MORE

10

Jul

  In his latest podcast, Jerry Cahill sits down with Storm Johnson, a 22-year-old CFer who is currently recovering from a double lung transplant at Duke. Before his transplant, Storm’s lung function dropped to 8%. Tune in to hear about READ MORE

27

Jun

We all have hopes and dreams, but too many of us never accomplish them.  Why?  Fear, procrastination, health problems – there are all sorts of reasons why.  However, you can realize your dreams or at least shoot for them and READ MORE

20

Jun

No Control

Life is not a controlled experience whether you have a chronic disease like CF or not. But, as human beings, we desperately try to control all aspects of our lives. This is as true for me as for anyone else, READ MORE

05

Jun

Being “Normal”

  When I was a child, I was embarrassed for anyone to know I had cystic fibrosis. I just wanted to be like everyone else. For me, that meant hiding my CF. I didn’t focus on what I couldn’t do. READ MORE

29

May

I’m 61 from Brooklyn, New York and I’m a cyclist, a double lung transplant recipient and I also happen to have cystic fibrosis (CF). CF is a genetic disease that affects the lungs, digestive system and many other organs in READ MORE

22

May

When living with cystic fibrosis, knowing your mutation is key, but it doesn’t have to be the sole focus of living your life. In fact, it absolutely should not be. If you’re lucky enough to have the right drugs to READ MORE

15

May

Heroes

    According to Miriam Webster dictionary, the simple definition of a hero is “a person who is admired for great or brave acts or fine qualities; and a person who is greatly admired.” This definition doesn’t mention anything about READ MORE