54 Years Old and Living-Breathing Succeeding With Cystic Fibrosis
Episode #0086 Travis Flores – Giving Back to the CF Community

Travis Flores, 18 years old with cystic fibrosis, grew up in Ohio and is attending college in New York City. Besides going to school, Travis has written a children’s book, has two websites that are raising awareness and funds for cystic fibrosis and is a "Heroes of Hope" award recipient. Travis is living, breathing and succeeding with CF.

  • Travis started advocating for cystic fibrosis at a very young age and “embraces cystic fibrosis.”
  • The Spider Who Never Gave Up is a children’s book that Travis wrote when he was eight. (www.sparkeythespider.com)
  • Travis also created a non-profit organization that helps get computers for children and adolescent patients in the hospital so they can communicate friends (www.tfcf.org)
  • Travis enjoys being active in the community, writing music, people watching and taking long walks.
  • “Living with CF, it is important to find a balance with being compliant and your social life, as well as having a great support team,” Travis says.
  • Travis’ goals include: graduate college, succeed in career, and raise awareness for cystic fibrosis.
  • Travis’ recommendation to everyone: “Embrace life!”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 8th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

Direct download: travis-flores-int.m4v
Category:podcasts -- posted at: 4:45pm EDT

Episode #0085 Casey Flaherty – Nutrition and CF

Casey Flaherty, 25 years old with cystic fibrosis, lives in New York City and is training for the ING New York City Marathon. Casey also is working, attending nursing school, taking yoga classes and living, breathing and succeeding with CF.

  • Casey eats a high-calorie, well-rounded diet consisting of fruits, nuts, vegetables, dairy for calcium, and lots of carbohydrates and protein.
  • “Besides being adherent to my treatments, I believe in good nutrition, exercise and rest. I try to get eight hours of sleep every night,” Casey says.
  • Casey loves junk foods like baked goods and pizza, but she tries to stay away from foods high in corn syrup and processed goodies.
  • “I am always eating throughout the day, so I make sure I pack my bag with fruit and trail mix,” she says.
  • Casey’s little secret on nutrition and CF is that she eats a lot of peanut butter and cheese as snacks because of their nutritional value.
  • “CF is part of my life, and I just deal with it. Everyone has something,” Casey says.
  • Casey’s recommendations to others with CF: “Be adherent to your medications, eat a well-balanced diet, rest and communicate with your doctor."
  • Casey believes “the more you put into your health, the more you will get out of it!”


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 7th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

Direct download: Flaherty3.m4v
Category:podcasts -- posted at: 6:37pm EDT

Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father - Windows Version

In this riveting video interview, Brian Gerofsky's wife and two sons share his story only months after he succumbed to CF in May 2009 at the age of 57.

  • Debbie was married to Brian for 26 years and has two wonderful sons -- Evin (22 years old) and Alex (19 years old).
  • “Brian was funny, loving, smart, passionate ... and to know him was to love him," Debbie says. Brian always called Debbie his soulmate, and his song for her was Van Morrison’s "Brown Eyed Girl.”
  • Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. “We lived our life around Brian’s CF but did not let it stop us from LIVING!” Debbie says.
  • The Gerofsky family did a lot together, enjoying the beach, museums, music, dance and Broadway shows. The family meant everything to Brian. He believed in hard work and LIVING YOUR LIFE!
  • Debbie, Evin and Alex believe the most important thing in a family dealing with CF is “open communication and respecting each other's feelings.”
  • Evin and Alex admired their dad’s strength and the fact that he was always there for them. “If my dad was here right now I would like to tell him THANK YOU and I love you very much,” they said.


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 6th in a series of 12 made possible through an unrestricted educational grant from Genentech to he Boomer Esiason Foundation.

 

Direct download: Gerofsky.wmv
Category:Vidcast -- posted at: 8:49pm EDT

Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father

In this riveting video interview, Brian Gerofsky's wife and two sons share his story only months after he succumbed to CF in May 2009 at the age of 57.

  • Debbie was married to Brian for 26 years and has two wonderful sons -- Evin (22 years old) and Alex (19 years old).
  • “Brian was funny, loving, smart, passionate ... and to know him was to love him," Debbie says. Brian always called Debbie his soulmate, and his song for her was Van Morrison’s "Brown Eyed Girl.”
  • Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. “We lived our life around Brian’s CF but did not let it stop us from LIVING!” Debbie says.
  • The Gerofsky family did a lot together, enjoying the beach, museums, music, dance and Broadway shows. The family meant everything to Brian. He believed in hard work and LIVING YOUR LIFE!
  • Debbie, Evin and Alex believe the most important thing in a family dealing with CF is “open communication and respecting each other's feelings.”
  • Evin and Alex admired their dad’s strength and the fact that he was always there for them. “If my dad was here right now I would like to tell him THANK YOU and I love you very much,” they said.


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 6th in a series of 12 made possible through an unrestricted educational grant from Genentech to he Boomer Esiason Foundation.

 

Direct download: GerofskyWEBFILE.m4v
Category:Vidcast -- posted at: 3:28pm EDT

Episode #0083 Kevin McCrea – Exercise for Clear Lungs

Kevin McCrea, 18 years old with cystic fibrosis, lives in Washington and loves life. Kevin attends Washington State University, is involved in many sports and enjoys spending time with family and friends.  He believes in “shaking up the lungs and clearing them out” through vigorous sports.

  • Kevin was diagnosed with CF at age two and grew up in a small town in the Northwest. Living in the country, Kevin enjoys swimming, hiking, fishing and riding dirt bikes.
  • “In high school, I was actively involved in team sports, including track and field [four years], basketball [two years] and football [one year]. Sports was a social event and has made a major impact on my health,” Kevin says.
  • Kevin’s training in basketball and track and field was two hours a day, six days a week, and the running and jumping made him cough and clear out his lungs.
  • Kevin on being compliant: “I believe in staying compliant and doing all my treatments, including exercise, so I can stay healthy and live a long life."
  • The biggest challenge Kevin faces with CF is time management of all the treatments.
  • “CF is not a big deal to me ... I was born with it, live with it, and it will not stop me," he says.
  • Kevin’s advice to other teens with CF: “Push forward an never give up – be active and go for it!”
  • “Step it up! Get out there and live and do not alienate yourself."


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 5th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

 

Direct download: KevinMcCrea.mp3
Category:podcasts -- posted at: 7:05pm EDT

Episode #0082 Philip Stevanovic – CF Related Diabetes (CFRD)

Philip Stevanovic is 36 years old with cystic fibrosis and diabetes. He lives in New York, is married with twin boys, works full-time as a construction manager, and received a double lung transplant in August 2007 at New York Presbyterian/Columbia University Medical Center in New York City.

  • Philip was diagnosed at age two at the University of Minnesota.
  • “Growing up with CF was pretty uneventful, except that I slept in a mist tent. I played soccer, tennis, football and lived in Africa, the Middle East and Yugoslavia,” Phil says.
  • Philip was diagnosed with CFRD in 2006 via glucose tolerance test.  “I kept getting repeat infections because I had high blood sugar, and bacteria feeds on sugar."
  • “I treat my CFRD with insulin shots before I eat, and that controls the sugar at meals. Blood sugars are controlled by food, medication and exercise."
  • “Since I started insulin treatment for my CFRD, I have gained weight, which is something I could never do with CF,” Phil says.
  • Philip sees an endocrinologist for his CFRD.
  • “My role models are my mother and father – they are responsible for making me the person I am today, and I thank them for everything.”
  • Philip’s recommendation to others with CFRD: “Enjoy life, be happy, stay focused and get an endocrinologist familiar with CF.”


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 4th in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: PhilStevanovich.MP3
Category:podcasts -- posted at: 3:09pm EDT

Episode #0081 Patrick Newman – Gearing Up for College with CF

Patrick Newman, 18 years old with cystic fibrosis, lives in Missouri. Patrick is playing sports, enjoying friends and family, and gearing up for college.  Patrick will attend the University of Missouri in the fall and is looking forward to being independent and taking responsibility for his health care.

  • Patrick works hard at staying healthy with all his treatments to manage his CF. “I know that those few tiny moments I spend doing my treatments could add years onto my life," he says.
  • “I grew up in a healthy environment, active in soccer, baseball and golf. I also learned, at an early age, to take responsibility for myself," he says.
  • Patrick is looking forward to going away to college to experience higher education, socializing and being “my own boss."
  • “I am very lucky to have my family and friends as a great support system, and I will be rooming with my best friend at college – it’s all about partnership," Patrick says.
  • The biggest challenge Patrick faces with CF is time management.
  • Patrick will be majoring in biology, wants to attend medical school, and hopes to study abroad for one semester.
  • Patrick on being compliant: “You do not want to play catch-up with your therapies, so just do it. I do it because I want to live and enjoy life!”
  • Patrick’s advice to others with CF thinking about college: “Step it up! Get out there and live and do not alienate yourself."


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 3rd in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: PatrickRamsey.mp3
Category:podcasts -- posted at: 5:13pm EDT

Episode #0080 Victor Roggli – Succeeding in the Career World with CF

Victor Roggli is 58 years old with cystic fibrosis. Victor lives in North Carolina, is married with a family, and works full-time in the medical research field. Victor, a professor of pathology, focusing on lungs, spends his workday teaching, doing research and consulting. Victor is LIVING, BREATHING and SUCCEEDING with CF in the career world and in life!

  • Victor was born in Winchester, Tenn., on a farm. He was diagnosed at 12 years of age.
  • “Growing up, I was always very active, playing touch football, softball and basketball. I am very thankful to my parents for letting me play sports and be a real boy," Victor says.
  • Victor attended Rice University, where he majored in biochemistry. He then attended medical school at Baylor in Houston.
  • “If I had a chance to do something differently when I was growing up with CF, I would have been more open about my CF and not put up so many walls," Victor says.
  • Victor now believes in being open about his CF and does his aerosol therapies at work. “With the American With Disabilities Act, people cannot discriminate.”
  • “Know your limitations with CF and be realistic in what you do in the career world," Victor advises.
  • Victor loves singing in the shower and has become a BIG fan of karaoke at least twice a week.
  • Victor’s advice to others with CF: “Do not adapt to CF, let it adapt to you.”

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 2nd in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: VictorRoggli.MP3
Category:podcasts -- posted at: 4:52pm EDT

Episode #0079 Chad Brown Believes in Laps for Life with Cystic Fibrosis- iPhone Version

Chad Brown is 27 years old with cystic fibrosis and lives in Seattle, Wash. Chad took his FEV1’s from 29% to 58% through the power of swimming. He previously was listed for a double lung transplant, and now he is getting his college degree, working to support himself, and exercising for life! Chad moved from Memphis to Seattle a few years ago and with a new CF team and new therapy and exercise discipline, he is LIVING, BREATHING and SUCCEEDING on a daily basis.

  • Chad was born in Tennessee and was diagnosed at birth.
  • “Growing up I was always treated very differently and in many ways babied. This temporarily helped me cope with the disease, but eventually it took a negative toll on me," Chad says.
  • Insurance issues forced Chad to move to the state of Washington. “Washington has a user friendly state insurance program for people with cystic fibrosis."
  • “For me, along with my therapies, swimming has kept me alive and healthy. When I first started swimming, I could barely swim a lap. I now swim 45 minutes ... 5 days a week!”
  • Chad is pursuing a college degree in engineering, working more than 30 hours a week to support himself, involved in a great relationship and looking forward to marriage and starting a family. “Life is good," he says.
  • Chad’s advice to others with CF: “No matter what, NEVER give up. It’s your life, and you only have one, so take charge and care of yourself!”


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 1st in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: ChadBrownInterviewb.m4v
Category:podcasts -- posted at: 10:27am EDT

Episode #0079 Chad Brown Believes in Laps for Life with Cystic Fibrosis

Chad Brown is 27 years old with cystic fibrosis and lives in Seattle, Wash. Chad took his FEV1’s from 29% to 58% through the power of swimming. He previously was listed for a double lung transplant, and now he is getting his college degree, working to support himself, and exercising for life! Chad moved from Memphis to Seattle a few years ago and with a new CF team and new therapy and exercise discipline, he is LIVING, BREATHING and SUCCEEDING on a daily basis.

  • Chad was born in Tennessee and was diagnosed at birth.
  • “Growing up I was always treated very differently and in many ways babied. This temporarily helped me cope with the disease, but eventually it took a negative toll on me," Chad says.
  • Insurance issues forced Chad to move to the state of Washington. “Washington has a user friendly state insurance program for people with cystic fibrosis."
  • “For me, along with my therapies, swimming has kept me alive and healthy. When I first started swimming, I could barely swim a lap. I now swim 45 minutes ... 5 days a week!”
  • Chad is pursuing a college degree in engineering, working more than 30 hours a week to support himself, involved in a great relationship and looking forward to marriage and starting a family. “Life is good," he says.
  • Chad’s advice to others with CF: “No matter what, NEVER give up. It’s your life, and you only have one, so take charge and care of yourself!”


This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 1st in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Direct download: ChadBrownInterview.mov
Category:podcasts -- posted at: 3:32pm EDT

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