Schneider Children’s Hospital of North Shore LIJ Health Systems CF Nurses
CF Nurses “embrace patients and family? and form a “partnership?
Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider
Children’s Hospital of North Shore LIJ Health Systems in New Hyde Park, New
York. Lynn and Susan have over 22 years of experience in nursing (12 in the
world of cystic fibrosis) and maintain a “positive attitude?.
- Lynn and Susan are part of a phenomenal “TEAM? at the large CF Center at
Schneider Children’s of North Shore LIJ Health Systems that has over 200
pediatric patients and over 80 adult CF patients.
- A typical day in the life of a CF nurse: “we spend ½ of the day seeing
patients in clinic followed by team meetings, phone triage, insurance issues,
clinical studies, and involvement in emergency cases? states Lynn and Susan.
- “What I like most about the job is working with the patients and their
families? states Lynn
- “The patients are always positive and very resilient? states Susan.
- Challenges with infants: “the educational process for the family it is a
long-term process? states Lynn
- Challenges with adolescents: “having patients take control of their care
and NOT abandoning care? states Susan.
- Challenges with adults: “ Learning to maintain a balance in life?
- Advice: Lynn and Susan both recommend that patients should have a case
manager at their insurance company. “Case managers can make things go very
- Goal: “We strive to give the best care and help our patients in every way
we can and not treat them like medical records?