Jerry Cahill's Cystic Fibrosis Podcast

Episode #0064 Cystic Fibrosis and Starting a Family (Windows WMV Format)

podcast@esiason.org — Fri, 9 May 2008 21:36:00 GMT

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Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basisâ
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

Jenny Davison grew up in Long Island and is one of 9 children.
âFamily is Extremely important to meâ states Jenny.
Deciding to have a family when you have CF can be risky business butâ âStarting a family while you are healthy and always being compliant is keyâ
âIt is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself firstâ states Jenny.
Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
Jenny states: âAlthough I have cystic fibrosis, Tim and I never regret having a childâ Dara has added so much to our livesâ
Jennyâs advice: âHaving CF does not mean you stop your life â you just keep living and have a career, think about getting married and starting a familyâ you do what everyone else does â I just have to work a little harder at it with CFâ
âEverybody has something and cystic fibrosis is what I haveââ

This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0064 Cystic Fibrosis and Starting a Family (Apple iPod Format)

podcast@esiason.org — Fri, 9 May 2008 20:24:00 GMT

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Title: Cystic Fibrosis and Starting a Family

Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basisâ
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

Jenny Davison grew up in Long Island and is one of 9 children.
âFamily is Extremely important to meâ states Jenny.
Deciding to have a family when you have CF can be risky business butâ âStarting a family while you are healthy and always being compliant is keyâ
âIt is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself firstâ states Jenny.
Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
Jenny states: âAlthough I have cystic fibrosis, Tim and I never regret having a childâ Dara has added so much to our livesâ
Jennyâs advice: âHaving CF does not mean you stop your life â you just keep living and have a career, think about getting married and starting a familyâ you do what everyone else does â I just have to work a little harder at it with CFâ
âEverybody has something and cystic fibrosis is what I haveââ

This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0063 Relationships and CF - Tiffany Christensen Speaks

podcast@esiason.org — Tue, 1 Apr 2008 21:37:00 GMT

Title: Relationships and CF â Episode #0063 Tiffany Christensen Speaks Out!

Tiffany Christensen, 34 years old with cystic fibrosis is LIVING BREATHING SUCCEEDING on a daily basisâ

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.
In this podcast, 34-year-old CF survivor Tiffany Christianson talks about the role of CF in establishing new relationships. Tiffany is the recipient of 2 double lung transplants and the author of the book Sick Girl Speaks. In this conversation with her, she dives into topics such as the importance of remaining compliant on a daily basis as well as the tricky issue of revealing your CF to your newfound friend. Whatever you do, she says, âdonât lose your identity in a relationship and ignore your CFâ.

Key messages in the Podcast include:

Tiffany is a relationship driven person and believes telling about your CF is good, but that âless is moreâ at the beginning of a romantic relationship.
âCF adds more layers to relationships but I am worthy of it!â says Tiffany.
Tiffany has learned to âstop making my disease my identityâ and to start communicating, enjoying, and having fun in a relationship â âWe are a teamââ
Relationships involve a lot of work and vulnerability â make sure you do your homeworkâ âRemember, like all relationships people may not accept each other due to certain likes/dislikes and that includes CFâ states Tiffany.
âDonât search for your worth in someone elseâs armsââ says Tiffany.
Tiffanyâs advice: â CF should be a motivator to get in a relationship. Relationships enhance your life! I have no regrets!â
www.sickgirlspeaks.com

* This âLIVING. BREATHING. SUCCEEDING.â Podcast/ Vodcast series is the 2nd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0062 Jerry Cahill - Importance of Exercise (Apple TV Video)

podcast@esiason.org — Thu, 7 Feb 2008 01:00:00 GMT

Title: Jerry Cahill â Exercising is Key to Being Compliant with CF

Jerry Cahill, 51 years old with cystic fibrosis is LIVING BREATHING SUCCEEDING on a daily basisâ

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world. âJerry Cahill â Exercising is Key to Being Compliant with CF,â features Jerry Cahill, a 51-year-old man with CF. Jerry talks about exercising as a form of CF therapy, sports improving his quality of life, exercising outdoors to keep his lungs CLEAR, and the importance of compliancy on a daily basis. Jerryâs philosophy is NEVER NEVER GIVE UP!â
Key messages in the Podcast include:

Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
Exercise outdoors to help keep your lungs clear.
âSimple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsâ states Jerry
Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
Jerry states; âDo not let CF stop youâ just get out there and live life to the fullest!â

* This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0062 Jerry Cahill - Importance of Exercise (Apple iPhone/iPod Video)

podcast@esiason.org — Thu, 7 Feb 2008 00:27:00 GMT

Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
Exercise outdoors to help keep your lungs clear.
âSimple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsâ states Jerry
Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
Jerry states; âDo not let CF stop youâ just get out there and live life to the fullest!â

* This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0062 Jerry Cahill - Importance of Exercise (Windows WMV File)

podcast@esiason.org — Wed, 6 Feb 2008 22:59:00 GMT

Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
Exercise outdoors to help keep your lungs clear.
âSimple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsâ states Jerry
Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
Jerry states; âDo not let CF stop youâ just get out there and live life to the fullest!â

* This âLIVING. BREATHING. SUCCEEDING.â Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0061 Cystic Fibrosis Institute (CFI) and Dr. Steven Boas

podcast@esiason.org — Fri, 18 Jan 2008 00:30:00 GMT

Title: Cystic Fibrosis Institute (CFI) and Dr. Steven Boas

The Cystic Fibrosis Institute (CFI) is committed to supporting those affected by cystic fibrosis in the Chicago area and to making a difference by being a meaningful and active source of assistance and advocacy for all CF individuals and families for dealing with the everyday challenge of cystic fibrosis.

Dr. Steven Boas, a Board-Certified Pediatric Pulmonologist, is dedicated to the care of children and adolescents with acute or chronic respiratory disorders.

The Cystic Fibrosis Institute was founded in 2003 on the fundamental principle that every person with CF deserves the opportunity to realize his or her full potential, to lead as normal life as possible and, despite the many obstacles they and their families face, share in the joys of life itself.

CFI is a 501(c) (3) Not for Profit organization based in Glenview, Chicago
Dr. Boas states: âCFI offers services/educational programs for people with CF and their families.â
CFI develops strategic partnerships with local and national businesses for support.
CFI offers clinical assistance and supports research investigations
âThe Winter Education Retreat being held on February 16th 2008 is our biggest event and is being held in Glenview, Illinois (just outside of Chicago)â states Dr. Boas.
Winter Education Retreat focuses on practical issues for people with CF with the goal of giving people with CF at least one more tool that they did not have prior to the event.
Dr. Boas is a major advocate of exercise and believes exercise is key or âjust getting people to moveââ
More info available at: www.cysticfibrosisinstitute.org or call 847-998-3434

Episode #0060 Linda Hood, Mother of Twin Boys with CF - Talks about Transitioning

podcast@esiason.org — Fri, 21 Dec 2007 21:31:00 GMT

Linda Hood, Mother of Twin Boys with CF, Talks about Transitioningâ

Linda Hood from Cincinnati, Ohio talks about growing up with twin boys with CF â Keith and Kyle â and transitioning to an adult CF center. Lindaâs boys were born 4 weeks early and found out they had cystic fibrosis at 6 months of age.

âFinding out my twin boys had cystic fibrosis was the most devastating thing in my lifeââ states Linda
Linda states; âthe doctors told a horrifying story and said my boys would not live to 18 years of ageâ
Linda and her family were proactive and started fundraising for a cure.
Being a caregiver is scary due to concerns/fear of germs at school.
Linda discusses making the transition from pediatric to adult CF center and the resources available to adults.
Linda gets her support from her husband - âMy husband is my strength and gets me through the tough timesââ
âStay hopefulâ do what the doctors tell you to doâ do not take shortcuts,â states Linda.
Lindaâs advice: âLet your son or daughter be boys or girls and ENJOY LIFE!â
Keith and Kyle are in college today and LIVING BREATHING SUCCEEDING.

Courtney Ward Runs for Team Boomer

Tue, 6 Nov 2007 20:07:00 GMT

Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes

Episode #0059 Justin Carlson, Transitioning from High School to College - The Next Step

podcast@esiason.org — Fri, 12 Oct 2007 19:47:00 GMT

Justin Carlson, Transitioning from High School to College â The Next Step to Success.

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

âJustin Carlson, Transitioning from High School to College â The Next Step to Success,â features Justin Carlson, an 18-year-old young man with CF. Justin talks about becoming independent and dealing with doctorâs appointments, CF therapies, going away to college vs. commuting, and the importance of compliancy on a daily basis. Justin believes in the importance of the âdoctor/patient relationshipâ and âtaking control of your CF.â

Key messages in the Podcast include:

Taking control of your CF and not letting it catch up on you, even when you donât feel sick, is crucial for a good quality of life.
Developing a strong relationship and communicating with your doctor and health care team, at an early age enhances your independence.
Time-management and âpracticed independence and confidenceâ help prepare individuals with CF for college and the real world.
The keys to staying healthy are compliance to medications, therapies, exercise, and good nutrition.
Parents should give their child with CF âremindersâ regarding therapy, and instill independence in them at an early age.
Parents should encourage their child to spend separate one-on-one âqualityâ time with their doctor.

* This Podcast is made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0058 Scott Johnson Competes in Hawaii Ironman for Team Boomer

podcast@esiason.org — Wed, 26 Sep 2007 19:51:00 GMT

Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th. âDreams do come true,â states Scott, as he gets ready for the Hawaiian Ironman Championships on October 13th 2007 in Kona, Hawaii. This is the most prestigious race in triathlon and the pinnacle of most peopleâs career. The Hawaii Ironman is the equivalent of the Tour de France, the Super Bowl, the World Series, and Wimbledon. Scott, competing for Team Boomer, has accepted this challenge to try and inspire people with CF to make exercise a part of their normal routine.

Scott grew up in Jacksonville, North Carolina and was diagnosed with CF at 2 months.
Scott received a double lung transplant on September 15th 2001.
âExercise and a Positive Attitudeâ helped Scott make it through the surgery.
Scott states: âMy quality of life with my new lungs is better than living with CFâ.
On Motherâs Day in May 2003, Scott crossed the finish line of his first triathlonâ a gift for himself and his mother Marilyn.
Scott has competed in over 25 triathlons of various distances and is now ready for the most elite triathlon, the Hawaii Ironman (swim 2.4 miles, bike 112 miles, and run 26.2 miles)
Scottâs family and fiancÃ, Leanne, will be cheering him on in Hawaii and Scott will be getting married 3 days after the Ironman competition.
Prior to each race Scott writes his transplant date on his forearm to remind himself of where he came from and his ânew beginningâ.
By competing for Team Boomer, Scott is helping to raise money for the Exercise for Life scholarship for people with CF. Join Scott and the cause: www.firstgiving.com/cfironman
Check out Scottâs photoâs and video at: www.myspace.com/slowesttriathlete
âDo Not Be Afraid of Deathâ Be Afraid of the Half Lived Lifeâ
Scottâs words of encouragement for others with CF or facing a transplant: âMaintain a positive outlook, donât give up, and keep exercising â miracles do happenââ

Episode #0057 Abby Tranel Wins 2007 Exercise for Life Scholarship

podcast@esiason.org — Thu, 30 Aug 2007 19:39:00 GMT

Title: Abby Tranel Wins 2007 Exercise for Life Scholarship

Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan Universityâs track in Lincoln, Nebraska. Abby is a graduate of Hampton High School in Hampton, NE and graduated with a 3.5 G.P.A. and will be attending Nebraska Wesleyan University in the fall.

Abby has always been involved in sports including volleyball, basketball, and track. School activities include the Student Council, Cheerleading, Speech, Drama, and President of the National Honor Society.
Abby was diagnosed with CF at birth and also has an older sister with cystic fibrosis that competed nationally in track & field for University of Nebraska.
âExercise and therapies for CF have very much become an integral part of my life and daily routine.â states Abby.
âAfter a few months of steady running, my lung function tests improved dramatically. It was not just the test results that kept me going with runningâ I just simply felt better, and most importantly felt that I was now in control of my CF, it was no longer controlling me!â Abby states confidently.
Abby lives a normal life and does not make a big deal about CF.
âMy mom has taught me and my sister to be very independent at an early age and I thank her for thatââ
Regarding collegeâ âI look forward to meeting new people and am beginning to realize all the opportunities that college and our world has to offer.â
Besides being compliant to her medication and therapy, Abby has learned the value of exercise, keeping a routine, and following through for positive results.
âI have realized that if you want to be big you have to dream bigâ and that is just what I am doing despite having CF!â states Abby.

Episode #0056 Patrick Robinson wins 2007 Exercise for Life Scholarship

podcast@esiason.org — Fri, 24 Aug 2007 21:07:00 GMT

Title: Patrick Robinson wins 2007 Exercise for Life Scholarship

Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. in Plaistow, NH as his mom, dad, and younger brothers Andrew and Christopher cheered him on. Patrick recently graduated with a 3.9 G.P.A. and will be attending Boston University in the fall.

Patrick is very involved in sports including skiing, hiking (Patrick is an Eagle Scout), track, and Ultimate Frisbee and attributes exercise to playing a major part in keeping his lungs clear.
âPlaying the trumpet in marching band also was a great form of airway clearanceâ states Patrick.
Patrick was diagnosed with CF at 3 months of age.
Great Strides Walk-a-Thon team âPatrickâs Patrollersâ walks every year to raise money for CFF and a cure.
Regarding collegeâ âI look forward to meeting new people and being more independentâ.
Besides being compliant to his medication and therapy, Patrick goes above and beyond this daily ritual by running 2 miles everyday.
âI believe in embracing the disease and not running from itâ states Patrick.

Episode #0055 Kristin McFall, Time Management and Staying Compliant in Adulthood

Mon, 23 Jul 2007 23:19:00 GMT

Title: Kristin McFall, Time Management and Staying Compliant in Adulthood

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

âKristin McFall, Time Management and Staying Compliant in Adulthood,â features Kristin McFall, a 36-year-old career woman with CF. Kristin talks about succeeding in life, her career, traveling, and winning the battle with CF on a daily basis through therapy compliance. Kristin believes in the importance of âunderstanding your disease and partnering up with your health care team.â The podcast is now available for downloading on www.jerrycahill.com beginning on May 4th, 2007.

Kristin discusses the importance of being compliant and proactive as an adult with CF while maintaining a career and busy social life.

Highlights from the Podcast include:

Taking care of your health and being compliant with medical therapies are an integral part to being successful in your career as an adult with CF.
The key ingredients to staying healthy and having a better quality of life are: compliance to medications & therapies, exercise, nutrition, hydration, and sleep.
CF is a life-long illness therefore you must learn to be an expert with yourself and revel in the day!
t is important to maintain a partnership with your CF Center and stand up for yourself.
CF adults must learn to âmulti-taskâ and âstay clearâ by being disciplined with your health care.
Kristinâs âFabulous 4â tips for being compliant include: bronchodilators, Pulmozyme, airway clearance, and inhaled antibiotics.

Episode #0054 The Big Fun Box

Mon, 2 Jul 2007 23:04:00 GMT

âMaking Fun Contagiousââ

Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their familiesâ ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, Findâems, imagination pad, thank you notes, plastic stencil, and playing cards.

âThe BIG FUN BOX is filled with imagination and you can let it take you wherever you want to goââ states Jo Anne
Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to âmake their own funâ
The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12)
The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. âOur goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXESâ states Jo Anne.
âThe BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longerâ
The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production.
The BIG FUN BOX is a 501 c (3) non-profit organization.

For more info: www.thebigfunbox.org or call: 904-730-0956

Episode #0053 Adult CF Family Day - MOV File

Wed, 20 Jun 2007 20:49:00 GMT

Title: Adult Cystic Fibrosis Day

Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle" with 40% of the CF population being adults and living longer with a better quality of life.

Adults with CF are attending college, have careers, and having families.
Adults with CF maintain a "positive mental attitude" and keep raising the bar.
With the explosion of the adult CF population "transitioning" to an adult program is crucial.
Adults with CF are living longer and maintaining a better quality of life.
Adults are mentors for younger individuals with CF and their families.

Episode #0053 Adult Cystic Fibrosis Day - WMF File

podcast@esiason.org — Wed, 20 Jun 2007 20:28:00 GMT

Title: Adult Cystic Fibrosis Day

Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are âliving a medical miracleâ with 40% of the CF population being adults and living longer with a better quality of life.

Adults with CF are attending college, have careers, and having families.
Adults with CF maintain a âpositive mental attitudeâ and keep raising the bar.
With the explosion of the adult CF population âtransitioningâ to an adult program is crucial.
Adults with CF are living longer and maintaining a better quality of life.
Adults are mentors for younger individuals with CF and their families.

Episode #0052 Kyle Connolly Interview

Tue, 12 Jun 2007 20:06:00 GMT

Title: Kyle Connolly Talks about being Compliant, Exercise, and College Life.

Kyle Connolly is a 21 year old college student that âstays clearâ by doing aerosols and vest treatments 3 times per day and exercising on a daily basis to keep his lungs clear. Kyle works very hard to stay healthy so he can have a better quality of life and enjoy!

Kyle was diagnosed at 7 weeks due to âfailure to thriveâ
Growing up with CF was non-eventful until high school when he started having more infections.
Kyle attends Xavier University in Cincinnati, Ohio and will be a senior next year.
âBeing involved in sports all my life has helped keep my lungs clear!â
Kyle participated in football, baseball, soccer, wrestling, and cross country growing up and now is a varsity cheerleader at Xavier University.
Kyle also enjoys running and competes in the FLYING PIG MARATHON every May in Cincinnati, Ohio. Kyle is part of a team and runs the Â marathon (13.1 miles)
âTime management is the biggest challenge I face daily living with CF but I just do it â I have no choice if I want to enjoy everything life has to offerâ states Kyle.
Kyle is very excited about all the new drugs in the pipeline for people with CF.

Episode #0051 Smart Vest The Airway Clearance System

Wed, 9 May 2007 18:40:00 GMT

Bob Hansen, Chairman, CEO, and co-founder of Electromed, Inc in 1992, makers of Smart Vest, discusses the newest and most advanced airway clearance system SMARTVEST. The vest is designed for comfort and ease-of-use to support patient compliance as well as being efficient, portable, and cost effective.

- Smart Vest â airway clearance system or High Frequency Chest Wall Oscillation (HFCWO) is the mechanical loosening, mobilization and release of excess mucous.
- The Smart Vest is effective, convenient, and comfortable. Patented vest design (soft fabric & washable) delivers HFCWO with a calmer, gentler, and more relaxed treatment experience.
- Generator is programmable to assure consistent treatments each day.
- Vest size fits small toddlers to large adults.
- Wheeled Smart Vest Trimeline Carrier travels easily and fits inside airplane as a carry-on.
- Smart Vest offers lifetime warranty and upgrade policy.
- âInnovation is an important part of our companyâ states Bob Hansen
- All field staff are Respiratory Therapists.
- Smart Vest is an international company and offers a 24 hour toll free number.
- âThe compact size of Smart Vest makes it a great for people with CF going away to collegeâ states Bob Hansen
- Smart Vest is based in New Prague, MN. For more info call: 800-462-1045.
- Website: www.electromed-usa.com

EXERCISE for LIFE SCHOLARSHIP

Mon, 30 Apr 2007 16:39:00 GMT

EXERCISE for LIFE SCHOLARHIP The Boomer Esiason Foundation has created a scholar-athlte award to assist cystic fibrosis senior high school athletes pursuing undergraduate degrees.

- "Exercise is the single most important thing in my life that keeps me healthy... jogging is a universal activity that everyone can partake in without the need for an expensive gm or pool membership" states Jerry Cahill who is a 50 year-old with CF. Jerry has been exercising all his life in spite of having CF.
- The goal of the scholar athlete award is to raise awareness, improve the quality of life and lifespan of individuals with CF through the power of daily physical exercise.
- The scholarship will be awarded annually based on demonstrated financial need, academic accomplishment and athletic ability in the area of running. All finalist will be timed in a 1.5 mile jog.
- Award: 1 female winner and 1 male winner each receiving $10,000. awarded to the college of their choice.
- The student/athlete should be jogging on a regular basis and training for the 1.5 mile run. All candidates will be judged on time.
- Scholarship launches May 1st 2007
- Deadline July 29th 2007
- For more information and applications go to: www.cfscholarships.com

Laps for CF

podcast@esiason.org — Thu, 12 Apr 2007 18:47:00 GMT

Laps for CF Foundation
...on the road to a cure...

The Laps for CF Foundation is an organization based out of Birmingham, Alabama that fights Cystic Fibrosis everyday. Together with CF supporters across the United States, the laps for CF Foundation raises money and awareness for Cystic Fibrosis.

The money the Foundation raises is awarded to 3 main organizations: The Cystic Fibrosis Foundation, CF Hope for Alabama, and CF Care Clinics.
Emily Schreiber was diagnosed with cystic fibrosis in the winter of 2003. After diagnosis and reading a book called Karen's Ride - where a young girl, Karen, raised money for her local hospital... Emily decided to do the same for Cystic Fibrosis.
The first year Emily swam at Wald Park in Vestavia, Alabama and raised over $60,000.
In 2005 Emily swam with the Auburn University swim team and raised over$220,000.
Emily plans on teaming up with the Boomer Esiason Foundation to combat cystic fibrosis by launching Swim-a-Thons with 15+ Universities across the nation.
For more information: www.lapsforcf.org
E-Mail Emily at: emily@lapsforcf.org

Episode #0050 Brian's Ride

podcast@esiason.org — Fri, 6 Apr 2007 19:20:00 GMT

Title: Brianâs Ride

Brian McCandless is like any average nineteen year old university student except, like 30,000 Americans, he has cystic fibrosis. On May 16th 2007 Brian will cycle from Pittsburgh, PA to Tallahassee, Florida and backâ to raise awareness for cystic Fibrosis. Brian will bike over 2,000 miles (25 day trip) averaging 100 miles per day.

- Brian was diagnosed at 2 months of age due to âfailure to thriveâ and is from West Sunbury, PA.

- Brian is a freshman at Slippery Rock University and a member of the cycling club

- âI believe biking is the best form of airway clearanceâ states Brian.

- According to Brian âPeople with CF are often told not to over exert themselves. I say EXERT ON! No one should ever be told they cannot do somethingâ

- Brian believes the most important factor in maintaining his health is âexercise and nutritionâ

- âMy goal for Brianâs Ride is to increase CF awareness, raise money for CF research, and most importantly, give hope to children who are diagnosed with CF.

- To donate to Brian's Ride or for more information go to: www.briansride.org

GOOD LUCK BRIAN!

Blubrry Jam Featuring Brother Love

podcast@esiason.org — Wed, 4 Apr 2007 20:56:00 GMT

Blubrry Jam Featuring Brother Love to raise funds for Boomer Esiason Foundation. Come Join the Fun!

Date
Saturday, Apr 7, 2007

Time
7:00 pm - 11:00 pm

Location
Canal Room
285 W. Broadway
New York, NY 10013 Date: April 7th
Location: Canal Room
New York, NY

Price: $18 Online
http://blubrryjam.eventbrite.com/

$20 at the Door

I hope to see you at the Canal Room

Episode #0049 CF Great Strides NYC Walk - Raising Money for a Cure!

podcast@esiason.org — Fri, 30 Mar 2007 18:18:00 GMT

Title: CF Great Strides NYC Walk â Raising Money for a Cure!

Dawn and Stan Zolek are parents of 3 year old Stanley, who has CF and a 1 year old daughter who is a carrier of the gene. They are chairing the NYC Great Strides Walk in their neighborhood, Battery Park City.

The event is âfeel good type of day!â and raises money for research to help find a cure for cystic fibrosis.

âStanley is compliant to his daily routine and does his âwork outâ (vest treatment) twice a dayâ states his dad Stan.
Stanleyâs website: ilovestanleynyc.com
âCF Great Strides is a fun day with lots of family and community involvementâ states Dawn Zolek.
CF Great Strides is a 6.2 mile walk and is the Cystic Fibrosis Foundationâs largest national fundraising event. The event has 100 sites nationally and raised over $32 million last year.
The metro New York area will be hosting 4 sites for the event:
- Battery Park City, NYC on Saturday, May 19^th 9am
- Rye Playland, Rye, NY on Sunday, May 20^th 9am
- Clove Lakes Park, Staten Island, NY on Saturday, June 2^nd 9am
- Bowdoin Park, Poughkeepsie, NY on Sunday, June 3^rd 9am

More information on CF Great Strides nationally is available at: www.cff.org/great_strides

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Mon, 26 Feb 2007 18:19:00 GMT

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Episode #0048 Keith & Kyle Connolly Interview

podcast@esiason.org — Wed, 21 Feb 2007 19:48:00 GMT

TITLE: âThe Connolly Twins â Transitioning into Adulthood with CFâ

With the help of todayâs therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling individuals with CF to pursue their dreams by entering college and the career world

Keith and Kyle Connolly, 21-year-old twin brothers and college students with CF talk about transitioning into college and adulthood. Keith and Kyle talk about growing up with CF and the lessons they have learned as they become more independent and responsible for their own health care. Keith and Kyleâs mother, Linda Hood, also shares her perspective on raising twin boys with CF and learning to âlet go.â

Keith and Kyle discuss the importance of taking responsibility for their CF health care while maintaining their busy college schedules.

Highlights from the Podcast include:

Preparation and compliance are integral in making a successful transition into adulthood with CF.
The keys to staying healthy are compliance to medications, therapies, and exercise.
Time-management in college is crucial for maintaining health and quality of life.
Prior to moving away to college, begin to transition into self-ownership of health care.
It is important to maintain a relationship with your CF Center.
For parents - instill realistic hope within your child, and raise him or her to be independent; through age-appropriate responsibilities related to their health care.
When children leave the home, parents should have confidence in how their children have been taught to care for themselves.

Episode #0047 Jerry Cahill's Exercise For Life Video (Windows Media Format)

podcast@esiason.org — Tue, 6 Feb 2007 20:05:00 GMT

Title: Action speaks louder than wordsâ âEXERCISE FOR LIFEâ

EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.

The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the âhere and nowâ

- âExercise is the single most important thing in my life that keeps me healthyâ states Jerry Cahill at 50 years old with cystic fibrosis.
- Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly âjogging/runningâ on a daily basis.
- Doctors and CF centers âtalk about itâ but we need to get everyone with CF âdoing itâ Your lungs are muscles and need to be worked to keep them clear and strong.
- Besides being âcompliantâ to medication and therapy routines â exercise should be part of EVERYONEâS daily ritual.
- Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging âoutsideâ is key to oxygenating the lungs and keeping your airways clear.
- âThe goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity

Episode #0047 Exercise For Life Video (iPod M4V Format)

podcast@esiason.org — Mon, 5 Feb 2007 18:19:00 GMT

Episode 0046: New Challenges in Obtaining & Maintaining Health Insurance

podcast@esiason.org — Sat, 20 Jan 2007 02:17:00 GMT

Beth Sufian Podcast Show notes

Title: New Challenges in Obtaining & Maintaining Health Insurance

Beth Sufian is an attorney and a 41 year-old with cystic fibrosis. She is the Director of the CF Legal Information Hotline, sponsored by CF Services Pharmacy, which has assisted over 7,000 people with CF. Beth serves on the CF Foundation Advisory Task Force on Adult Issues.

Beth talks about knowing your legal rights and advocating for yourself and children.
Beth discusses who qualifies for Social Security benefits, Medicare and Medicaid.
Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.
CF Legal Information Hotline offers free and confidential information on legal rights of people with CF. Call: 1-800-622-0385 or Email: CFLegal@cfserv.com
Learn about the âgolden nuggetsâ of HIPAA
âKeep good recordsâ suggests Beth
COBRA Insurance - Consolidated Omnibus Budget Reconciliation Act.
Beth gives pointers on Transitioning to Adulthood.
Beth also talks about Government Programs:
Beth Sufianâs clients include many people with CF. She is based out of Houston, Texas and travels nationally.

With Every Breath

podcast@esiason.org — Tue, 9 Jan 2007 18:22:00 GMT

Title: With Every Breath â stories about people living with cystic fibrosis.

Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. Katherineâs book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.

This book is very inspirational and educational for all involved in the world of cystic fibrosis.

Katherine is an outgoing young lady that swims on 2 teams, snowboarding, and loves socializing with her friends, music (cello) and writing.
Katherine attends high school and is a volunteer on the CF advisory panel at Childrenâs Hospital of Buffalo to help work towards better CF care.
âI want to travel to South Africa and Europe somedayâ states Katherine.
In Katherineâs book With Every Breath, the stories range from recounts of having a child diagnosed with CF to being a patient receiving a transplant.
Some stories simply share advice and perspective, while others share stories of travel, success, understanding, and change.
For more information on the book contact Katherine Russell:
www.lifewitheverybreath.com

Give the Gift of Life

jcahill@esiason.org — Wed, 20 Dec 2006 00:58:00 GMT

New Page 2

Title: Give the Gift of Lifeâ

A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant

With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.
He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie canât wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.
Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.
He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.
Please visit www.CharlieStockley.com
For more information and updates: info@charliestockley.com

December is the month of giving. We encourage everyone to make sure they are registered to show itâs important to them that others are given the opportunity to live a full and productive life. Charlieâs friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

Here are a few things to do:
1. Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net
2. When you sign up online, notify friends and family via email
3. Tell your family members that you have decided to become a donor so they will understand your decision and support it.
4. Say yes to donation on your driverâs license
5. If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life.

Passing of Charlie Stockley
From www.charliestockley.com
Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation.

Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

Bonus Episode #0045: Sean Hunter Presents The Night Before Christmas

podcast@esiason.org — Sun, 10 Dec 2006 20:27:00 GMT

To everyone who loves football, Christmas and children.

A special podcast presentation of the classic Christmas story

The Night Before Christmas

has been added to the Boomer Esiason web site.

www.esiason.org
&

Jerry Cahill's Cystic Fibrosis Podcast

www.jerrycahill.com

What we do want you to know is that it is OK to download this pod cast to your computer and to CDs without any cost or violation. In fact, we encourage you to do so.

Christmas is a special time, and the hope is that you can help others enjoy sharing Christmas memories and traditions with their family, neighbors and friends.

So please,

be part of the Christmas spirit, enjoy the special recording,

and pass the world along.

Always the best,

Sean Hunter

Episode #0044 Cystic Fibrosis.com Celebrates 10 year Anniversary.

podcast@esiason.org — Fri, 1 Dec 2006 21:39:00 GMT

Title: Cystic Fibrosis.com Celebrates 10 year Anniversary.

Jeanne Barnett, former computer math teacher and now President of cysticfibrosis.com, talks about her site and how "it is a support community for those dealing with cystic fibrosis" Launched in 1996 with a friend who had CF, the site was started as an experiment but evolved into a major resource for the CF Community that gives people the opportunity to discuss CF with others.

CysticFibrosis.com is a public website and you do not have to sign up.
The site has over 117,372 messages as well as 11,112 threads and 3,396 users
1.   Jeanne reads every message and the site has over 1,000 visitors per day
2.   Cystic Fibrosis.com (www.cysticfibrosis.com) is a "place to share and celebrate life!" states Jeanne Barnett.
3.   The website is global and includes: forums, blogs, faq's, library, kids, CF Center info, photo galleries, recipes, and a section for newly diagnosed.
4.   The forums include topics on adults, families, new diagnosed, nutrition/exercise, transplants, and teenagers/young people.
5.   Jeanne is passionate about her site and states; "The CF Community is ONE family and we are here to support and inspire each other"
www.cysticfibrosis.com

HAPPY 10 YEAR ANNIVERSARY!!!! KEEP UP THE GREAT WORK!!!!

Episode #0043 Rob Safuto's New York Minute Podcast - Mr. Dennehy's Party Coverage

podcast@esiason.org — Tue, 21 Nov 2006 23:30:00 GMT

A big THANKS to Mr. Rob Safuto of the New York Minute Podcast

for his coverage of the New York City Post-Marathon Party at Mr. Denney's Pub. Rob has been a Quiet Giant of the Boomer Esiason Foundation for quite a while...and was instrumental in teaching me about podcasting in early 2005.

This Podcast can also be heard on the New York Minute Podcast. The following is Rob's show notes from his podcast.

Check out all of Rob's Podcasts

http://www.podcastnyc.net (New York City Podcast Network)
http://www.newyorkminuteshow.com (Podcast Guide to New York City)
http://www.getyourflow.com (Flow is music...liberated!)
http://community.podcastnyc.net (Join the community!)

This is as close as well get to a New York City Marathon special this year on the show. Not bad though. In association with my friend Jerry Cahill, host of the Cystic Fibrosis Podcast, I covered the Team Boomer post marathon fund raiser.

The event was held at a very nice Irish Pub called Mr. Dennehy's. The pub is located at 63 Carmine St. near 7th Avenue South.

And yes I did interview one actual runner in the marathon. I also talk with Jerry about Team Boomer and mix with some locals who talk about their experiences around town.

This episode also includes a promo for an upcoming show by my pal Brother Love.

Episode #0042 Sarah Katopodis Interview

podcast@esiason.org — Fri, 17 Nov 2006 19:17:00 GMT

Title: RUN SARAH RUN!!!

Sarah Katopodis ran her 1st Marathon in NYC and ran it for Team Boomer â Fighting Cystic Fibrosis, and we are honored!! Sarah raised over $4,000 for the Foundationâs Exercise for Life Scholarship and was presented with a game ball for her unending passion and support for the CF community.

1.   Sarah grew up in New Jersey and attended the University of Scranton and has a masters in marketing.

2.   Sarah is blessed with a beautiful loving family and has a very supportive husband, Taso, as well as 3 phenomenal sons that keep her running marathons on a daily basis â Alex, Evan, and Steven. All were cheering Sarah on during the marathon.

3.   âAs a child I used to run with my Grandfather at 6am during the summer at Long Beach Islandâ states Sarah.

4.   Sarah continued here passion for running with a running group while working in Charlotte, NC and ran 2 half marathons.

5.   Sarahâs NYC Marathon application was declined a few times before finally being accepted for the 2006 NYC Marathon. âFrom that day forward â the training and commitment beganââ states Sarah.

6.   Sarah and her family launched www.cysticfibrois.com over 10 years ago â a informative/educational/supportive site for people with CF and their families and therefore was committed to running the NYC Marathon for a cause related to cystic fibrosis.

7.   Sarah finished the marathon in 6 hours and 20 minutes and is a winner spiritually, physically, and as a committed person in the game of life â CONGRATâS!!!!

8.   Check out Sarahâs award winning blog on her marathon experience at: http://blogs.cysticfibrosis.com/index.cfm?forumid=250

Also check out cysticfibrosis.comâs website at: www.cysticfibrosis.com

Joe Kelly Runs NYC Marathon for Team Boomer

podcast@esiason.org — Tue, 14 Nov 2006 01:50:00 GMT

Donal Dennehy celebrates with Joe Kelly at Mr. Dennehyâs Pub located at 63 Carrmine Street in Greenwich Village NYC. The 1st Annual Post Marathon Party was a huge fundraising success for the Boomer Esiason Foundationâs Exercise for Life scholarship program for people with cystic fibrosis.

1.   Joe Kelly runs his first marathon for Team Boomer â Fighting Cystic Fibrosis in under 4 hours

2.   The Boomer Esiason Foundation presents Joe Kelly with an autographed football by Boomer Esiason for his great cause

3.   Donal Dennehy accommodates the Boomer Esiason Foundation at his restaurant to help raise funds for people with CF

4.   Donal is presented with a game ball for his commitment to the fight against cystic fibrosis

5.   The event was a huge success raising over $5,000. for scholarships and a fun time was had by all.

6.   Donal states âThis is the first of many fundraising events that Mr. Dennehyâs will partner up with the Boomer Esiason Foundation to raise money for a cure.

For more information on Mr. Dennehyâs go to: www.mrdennehys.com

MR. DENNEHYâS TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC

podcast@esiason.org — Fri, 27 Oct 2006 18:34:00 GMT

MR. DENNEHYâS TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC MARATHON BENEFIT

- On Sunday, November 5 from 7:00 PM to 9:00 PM, Mr. Dennehyâs located at 63 Carmine Street @ Seventh Avenue in New York Cityâs West Village will host a post-marathon celebration to benefit Team Boomer- Fighting Cystic Fibrosis.

- The event is open to the public and ticket price is $25, which includes a two-hour open bar. All proceeds from the evening will go directly to the Boomer Esiason Foundation (BEF) to support the Exercise for Life Scholarship for individuals with cystic fibrosis.

- Joe Kelly, an employee at Mr. Dennehyâs, will be representing TEAM BOOMER in the marathon along with many other international runners.

- Team Boomer â Fighting Cystic Fibrosis was developed by BEF and is a USATF-registered competitive club.

- Those who are a part of Team Boomer participate in various races, obtain sponsors, and donate the pledges they receive to BEF. Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF.

- BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with CF.

- Mr. Dennehyâs, located at 63 Carmine Street at Seventh Avenue, is a traditional Irish pub and restaurant known for its live music, great food and charming bartenders.

- Mr. Dennehyâs has received rave reviews from Time Out New York, New York Magazine and CitiSearch and is a New York pub thatâs not to miss.

For more info:

o Call: 212-414-1223

o www.mrdennehys.com

o donal@mrdennehys.com

Episode #0041: Isabel Stenzel-Byrnes Interview

podcast@esiason.org — Fri, 13 Oct 2006 23:08:00 GMT

Isabel Stenzel Byrnes Interview

The Power of Two - a family story of twins Isabel and Anabel surviving with CF

Jerry Cahill interviews part time social worker, Isabel Stanzel Byrnes, who is 34 years old with CF post transplant 2.5 years (Isabel received the gift of life on February 6th 2004). Isabel has an identical twin sister, Anabel Stenzel, who also has CF and is post transplant 6 years.

Isabel grew up in Los Angeles, California
Diagnosed 3 days post birth
At age 5 started having a lot of respiratory infections
Isabel started having chronic pseudomonas at age 10
Attended Stanford University undergraduate school
Attended University of California, Berkeley graduate school
Isabel and Ana lived in Japan and taught English for a few years
Isabel has always been active in the area of exercise pre and post transplant and is an avid hiker.
Isabel has been married for 8 years to a wonderful man and support person, Andrew Byrnes.
"The transplant was a spiritual event" states Isabel.
"I survived with CF and the transplant due to all my exercise, I had a lot of muscle strength"states Isabel.
Isabel has competed in the United States Transplant Games that includes over 1800 athletes. Isabel won 1 gold and 2 silver medals!!
Isabel and Anabel have written a book: The Power of Two. A family story about twins surviving with cystic fibrosis.
For information on the book please contact Isabel at: isabear27@hotmail.com

CF Education Day comes to NYC

Tue, 3 Oct 2006 02:04:00 GMT

Title: CF Education Day comes to NYC

When: October 15th 2006 from 11am to 4pm

Where: The Yale Club in New York City

Info: cfday2006@aol.com

Phone: 800-622-0385

Come hear nationally recognized speakers at this one time event.
The event is free and includes lunch
Everyone must register to attend
Speakers will discuss:
o   ways to obtain health insurance and make it cover treatments needed to fight CF
o   Laws that protect children with CF in school
o   Strategies for living a successful life with CF
o   New drugs on the CF Horizon
o   Treatments and care of children and adults with CF

Due to cross infection no one with CF can attend this event.
To find out other ways adults with CF can participate in this event please contact: cfday2006@aol.com or call: 800-622-0385

Running With Team Boomer

podcast@esiason.org — Thu, 28 Sep 2006 19:45:00 GMT

TEAM BOOMER â FIGHTING CYSTIC FIBROSIS
USA Track & Field Club #06-1114

Millions of people worldwide are marathon runnersâ
Millions of people worldwide jog, bike, swim, and exerciseâ
Some people jog to stay in shapeâ
People with cystic fibrosis jog to BREATHE!

Because I have cystic fibrosis I want to prove that I can breathe.
-Jerry Cahill/Age 50 Cystic Fibrosis Podcast

Team Boomer â Fighting Cystic Fibrosis was developed by the Boomer Esiason Foundation (BEF) and is a USATF-registered competitive club. BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with cystic fibrosis (CF). Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF, which helps them pursue their academic dreams.

As an athlete, Boomer Esiason knows how important exercise is for improving health, especially for those with cystic fibrosis. Participating in sports and physical activity helps increase the quality of life and health, and teaches discipline. Like athletesâ dedication and daily regiments on the playing field, CF patients must be compliant to daily therapy and medication routines. Your lungs are muscles and need to be worked to keep them clear and strong â exercise should be part of EVERYONEâS daily routine. Team Boomerâs goal is to improve the quality of life and increase the lifespan of individuals with CF through the power of daily physical exercise.

By sponsoring an athlete, you are helping the Boomer Esiason Foundation and Team Boomer raise money for the Exercise for Life Scholarship.

Join Team Boomer Today

Team Boomer Donor Sheet

Team Boomer Pledge Sheet

Team Boomer Sponsor Sheet

Episode #0040 CF Roundtable Gives Back to the Cystic Fibrosis Community

podcast@esiason.org — Fri, 1 Sep 2006 00:17:00 GMT

Title: CF Roundtable gives back to the cystic fibrosis community

CF Roundtable is a newsletter for adults who have cystic fibrosis is published by United States Adult Cystic Fibrosis Association, Inc. (USACFA). Roundtable, now known as CF Roundtable, was founded in 1989 by an individual with CF, Lisa McDonough. CF Roundtable is an educational newsletter.

Jerry Cahill interviews Board members of USACFA; Paul Feld (49 with CF post transplant 19 months), Cynthia Dunafon (42 with CF), Laura Tillman (58 with CF) and Kathy Russell (62 with CF)

CF Roundtable/USACFA is a independent, 501 c (3) tax exempt, non-profit organization whose Board of Directors all have CF.

CF Roundtable is published quarterly with over 1500 subscribers and available for $10.00/year. The newsletter is over 40 pages with color pictures and 75% consists of personal stories and a column by a medical professional

Web site: www.cfroundtable.com or via phone: 503-669-3561

Topics include: Being a parent, transplant, parents of newly diagnosed, when to tell employers, and insurance issues â to name a fewâ

Board members comments on âwhy they do the newsletter?â

Cynthia: âgive back to the CF Communityâ
Paul: âoffer my life experiences post transplant and make a differenceâ
Kathy: âfun and educationâ
Laura: âcontribute to CF societyâ

Episode #0039 Understanding CF Lung Therapies

podcast@esiason.org — Tue, 25 Jul 2006 21:02:00 GMT

TITLE: Understanding CF Lung Therapies

Dr. Joan DeCelie-Germana, director of the CF Center at Schneider Childrenâs Hospital in New Hyde Park, New York, and assistant professor of pediatrics at the Albert Einstein College of Medicine in the Bronx, New York discusses the importance in maintaining a consistent daily treatment regimen to manage lung disease.

Â With the help of todayâs CF lung therapies, CF patients are now living longer and more active lives than ever before.
Â Pulmonary treatments, especially the standard therapies, are critical to helping CF patients stay as healthy as possible.
Â For optimum health, itâs important to adhere to a doctor-recommended treatment schedule each day, and to take the treatments in the right order.
Â A recommended order of daily treatment for a CF patient is Bronchodialator, PulmozymeÂ (dornase alfa), The Vest or similar chest wall oscillator, and then TOBIÂ (tobramycin solution for inhalation), but your doctor will recommend the treatment schedule thatâs right for you. Add-on therapies such as hypertonic saline may be appropriate for certain patient populations.
Â Getting regular physical exercise and following a nutritious, high-calorie diet are also important for maintaining good health.

CFRI TEEN & ADULT DAY RETREAT

podcast@esiason.org — Mon, 24 Jul 2006 19:33:00 GMT

Title: CFRI TEEN & ADULT DAY RETREAT

The CFRI Retreat is August 6th and 11th in Menlo Park, California for teens, 15-18 years and adults with cystic fibrosis, their family members and health care providers. The event is fun, educational and a safe environment to meet some great friends!

The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.

Activities include daily exercise, arts & crafts, rap sessions, and educational workshops with guest speakers.

Cost is $65 per person for entire week.

Scholarships available.

Safety is a top priority: ALL people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments.

For more info: http://www.cfri.org/home2.html

Episode #0038 Emily Schaller Interview

podcast@esiason.org — Thu, 6 Jul 2006 19:39:00 GMT

Title: Emily Schaller âRocks CFâ through rock & roll musicâ

1. Emily Schaller is 24 years old with cystic fibrosis and living in Detroit, Michigan. Emily believes her goal in life is to âspread awarenessâ about cystic fibrosis and is doing so in her rock and roll band. www.letsrockcf.org .Emily was diagnosed at 18 months
2. âI attended CF camps when I was younger but they were shut down due to cross contaminationâ so now people with CF go to cystic fibrosis chat roomsâ states Emily.
3. âTime managementâ is Emilyâs biggest challenge due to all the therapy compliance.
4. Emily is allergic to most medications therefore needs to be in hospital for iv antibiotics vs. home care.
5. Emilyâs passions include rock & roll and Broadway shows.
6. Activities such as drumming and jogging help keep Emily healthy.
7. Emily is a drummer in a rock & roll band called âHELLENâ and her brother Jason is also in a band called âSOUTH NORMALâ.
8. Detroit Rocks CF is a group of 12 local bands that play music for a worldly cause and have a benefit for CF called âJust Let Me Breathâ
9. Letâs Rock CF music cd available at: www.letsrockcf.com.
10. âKeep goingâ stay activeâ play in a band or play sportsâ and live your life to the fullestââ Emilyâs advice to others with CF.

Living - Breathing - Proof

podcast@esiason.org — Mon, 26 Jun 2006 20:43:00 GMT

Living Breathing Proof

Celebrating my 50th Birthday !

Remember - Compliance, Nutrition, Exercise and Determination are the keys to having a great quality of life with cystic fibrosis

Exercise For Life CF Athletic Scholarship

podcast@esiason.org — Fri, 23 Jun 2006 15:34:00 GMT

Exercise For Life CF Athletic Scholarship

Presented by the Boomer Esiason Foundation

Details Coming Soon!

Episode #0037: Schneider Children's Hospital of North Shore LIJ Health Systems CF Nurses

podcast@esiason.org — Sun, 18 Jun 2006 16:55:00 GMT

Schneider Childrenâs Hospital of North Shore LIJ Health Systems CF Nurses

Title:

CF Nurses âembrace patients and familyâ and form a âpartnershipâ

Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider Childrenâs Hospital of North Shore LIJ Health Systems in New Hyde Park, New York. Lynn and Susan have over 22 years of experience in nursing (12 in the world of cystic fibrosis) and maintain a âpositive attitudeâ.

Lynn and Susan are part of a phenomenal âTEAMâ at the large CF Center at Schneider Childrenâs of North Shore LIJ Health Systems that has over 200 pediatric patients and over 80 adult CF patients.
A typical day in the life of a CF nurse: âwe spend Â of the day seeing patients in clinic followed by team meetings, phone triage, insurance issues, clinical studies, and involvement in emergency casesâ states Lynn and Susan.
âWhat I like most about the job is working with the patients and their familiesâ states Lynn
âThe patients are always positive and very resilientâ states Susan.
Challenges with infants: âthe educational process for the family it is a long-term processâ states Lynn
Challenges with adolescents: âhaving patients take control of their care and NOT abandoning careâ states Susan.
Challenges with adults: â Learning to maintain a balance in lifeâ
Advice: Lynn and Susan both recommend that patients should have a case manager at their insurance company. âCase managers can make things go very smoothlyâ
Goal: âWe strive to give the best care and help our patients in every way we can and not treat them like medical recordsâ

Episode 0036: Richie Keane Interview

podcast@esiason.org — Wed, 31 May 2006 20:11:00 GMT

Title: Richie Keane recommendation to all people with CF: âStay Clearââ

Jerry Cahill interviews Richie Keane who is 49 years old and âloving and respecting lifeâ Richie grew up in Long Island, NY and is one of 9 children (3 out of 9 have CF â one sister Valerie passed away and Jen Davison is doing well and recently did a podcast)

- Richie grew up in Baldwin, NY.
- Diagnosed at birth âI was a purple babyâ
- Richie was very active growing up playing football, baseball, and golf.
- âI started getting sick around 18 years of age and had pancreas surgery at age 30â states Richie.
- The biggest challenge Richie faces is that his breathing has gotten tougher, the complications that develop from CF, and all the time involved doing medications.
- Complications that Richie has experienced include: diabetes, pancreatitis, and osteoporosis (broke over 30 ribs)
- Richie states: âliving with CF is tough but I love life and CF has taught me to respect lifeâ
- Richie has been married for 18 years to his wonderful wife Maryanne â she is a âspecial personâ he states.
- Listed for a double lung transplant Richieâs dog âgets me off my buttâ and keeps him active prior to transplant.
- Richieâs advice: âkeep your chin up, enjoy life, and take the time to get your lungs moving to keep them clearâ

Episode #0035: April Biggs Keeps on Dancing after Double Lung Transplant

podcast@esiason.org — Thu, 11 May 2006 18:00:00 GMT

Title: April Biggs âKeeps on Dancingâ after Double Lung Transplant

April Biggs is 31 years old and received the gift of a double lung transplant on August 15th 2004 at New York Presbyterian Hospital in New York City.

-     April grew up in Jacksonville, Florida and was diagnosed with cystic fibrosis at one years old.

-     Growing up the doctors told her parents âTreat April like a healthy person and to live as fully as she canâ

-     April started dancing at 5 years of age and is still dancing and choreographing post transplant.

-     April attended Florida State University.

-     âCF causes a lot of alienation due to the fear of catching germs from others with cystic fibrosis and thatâs a dragâ states April

-     âPeople with CF have a strong will to live and usually do pretty well getting through lung transplantsâ states April

-     âMy family is a GREAT support systemâ states April

-     Aprilâs FEVâs dropped from 85% to 30% and had a lot of hemoptosis which expedited the need for a transplant.

-     Aprilâs recommendation to anyone with CF and anyone facing a lung transplant: âexercise and if you canât run, walk!â alsoâ âlive your life to the fullest and do it!â

Episode #0034: CFRI - Cystic Fibrosis Research Inc.

podcast@esiason.org — Wed, 3 May 2006 19:17:00 GMT

Title: CFRI (Cystic Fibrosis Research Inc.) A great organization!

CFRI is a very caring and committed organization to cystic fibrosis

- CFRI started 31 years ago by parents of children with CF to give support and raise money locally on the west coast for research and to make a difference for people living with CF.

- Carroll Jenkins, Executive Director, states: CFRI is a small group of 4 people and a few volunteers that wear many hats.

- CFRI address: 2672 Bayshore Parkway, Mountain View CA 94043

- Phone: 650-404-9975

- http://www.cfri.org

- cfri@cfri.org

- Mission Statement: Cystic Fibrosis Research Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

- Carroll Jenkins states: We believe in the value of collaboration with other organizations for one cause, and each organization can build on each others strengths.

- CFRI does both educational and fundraising events

1.) 19^th Annual Educational Conference: August 4^th- 6^th, 2006, a three day event for adults with CF, caregivers, researchers, health care providers, family members, as well as the non-research community. Focus for this year's seminar: THE CYSTIC FIBROSIS JOURNEY: ALL AGES, ALL STAGES

2.) Teen/Adult Day Retreat: August 6^th - 11^th 2006, for individuals with CF and their significant other. The goal is education, support, and fun

3.) 22^nd Annual Golf Fundraising Tournament: August 7^th 2006 @ Cinnabar Hills Golf Club, San Jose CA.

4.) Mother's Day Tea: May 14^th 2006. Ã Warmest appeal to connect people and the largest avenue of fundraising for CFRI. You can get more info and donate at: cfri@cfri.org or call: 650-404-9981

Carroll Jenkins states: I am honored to work with CF. People with CF are amazing, not only do people with CF appreciate and value life, they appreciate the moment.

Episode #0033 Bonnie Strangio Educational Scholarship

podcast@esiason.org — Mon, 17 Apr 2006 19:03:00 GMT

Bonnie Strangio $2500 Education Scholarship

Application Deadline: June 30, 2006

The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living with cystic fibrosis who, like Bonnie, has an upbeat personality and a "can-do" attitude and shows a tremendous passion for life in achieving their goals despite battling CF.

Bonnie loved life and everything in it. She appreciated family, friends, and people in general. She always offered a patient ear to listen to friends. Bonnie held a B.A. in Psychology and Masters in Teaching that took her down the career path of a special education teacher in a New Jersey high school where she focused on allowing learning disabled students to integrate in mainstream society. Strong, brave, and giving, she never felt sorry for herself but strove to make the best of everything. Everyone, young and old, loved her!

CRITERIA
An undergraduate or graduate student who has cystic fibrosis and whose service and commitment to the prevention and cure of cystic fibrosis is exemplary.

SELECTION PROCESS
- Candidate will complete an application.
- Candidate will submit all necessary documentation including:
- Essay on post graduation goals.
- Recent photo.
- Letter from physician confirming CF diagnosis.
- Most recent W2 form verification for both parents.
- Transcript (high school, college, or graduate).
- Letter of acceptance from academic institution.
- The committee will choose finalists who will be interviewed thereafter.
- The award recipient will be chosen by a majority vote.

SELECTION TIME PARAMETERS
Fall term

APPLICATION
Available at the Boomer Esiason Foundation web site: http://www.esiason.org

Available at: http://www.cfscholarships.com/bonnie_strangio_scholarship.html

CONTACT

Boomer Esiason Foundation
c/o Jerry Cahill
417 Fifth Avenue, 2nd Floor
New York, NY 10016
Phone: 646-344-3661
Fax: 646-344-3757

EMAIL QUESTIONS TO: jcahill@esiason.org

Episode 0032: Jennifer Davison Interview

podcast@esiason.org — Wed, 29 Mar 2006 23:31:00 GMT

NO LIMITS!!!!

Jerry Cahill interviews Jennifer Davison who is 37 years old and living strong, succeeding and NOT letting cystic fibrosis get in her way. Jennifer grew up in Long Island, New York and is a registered nurse at Long Island Jewish/North Shore Medical Center.

1. Jennifer is one of 9 children, 3 with CF.
2. Jennifer attended Fashion Institute of Technology (FIT) and after working in the fashion industry decided to focus her career in the health field of nursing
3. Married to Tim and with a beautiful daughter â Dara â Jennifer âjuggles 3 jobs - career, family, and healthâ
âI was treated NORMAL growing up â with a big family there was no time to feeling sorry for yourselfâ states
4. Jennifer âwe just got off our butt and livedâ
5. Jenniferâs first hospitalization came at age 17 years old.
6. âBeing active is the key to good quality of life â I ski, play racquetball and ride my bikeâ states Jennifer.
7. Jennifer states: âCF is part of who I am but does not define meâ
8. âCF does NOT stop me from living â I just get out there and LIVEâ
9. Jennifer recommends that ALL people with CF should âget up at out and enjoy life and do not put restrictions on yourselfâ

Episode 0031: 2006 Boomer Esiason Foundation Booming Celebration

podcast@esiason.org — Tue, 14 Mar 2006 02:54:00 GMT

On March 11, 2006 the Boomer Esiason Foundation held it's 13th Annual Booming Celebration. The Booming Celebration is one of the largest single event cystic fibrosis fundraiser in the USA with over $3,000,000 raised to help fund CF research in one night. Congratulations to Steven M. Bowman 2006 Boomer Esiason Foundation Most Valuable Player.