Category Archives : JOURNEY

20

Jul

Lauren P.
Lauren P.

“You are your home.” Halfway through my eighth grade year I was at the peak of my distance running career, leading my middle school cross country team and placing first overall in some meets. That’s when the hip pain started READ MORE

14

Mar

Heather H.
Heather H.

My name is Heather, and I was diagnosed with CF when I was 3-months-old – at a time when doctors did not think I would live to kindergarten. Boy did I prove those doctors wrong. While I have hit some READ MORE

08

Feb

Kristal
Kristal

“We don’t know how strong we are until being strong is the only choice we have.” Hi! My name is Kristal, and I was diagnosed with cystic fibrois when I was only 8-months old. I have always been active in READ MORE

27

Mar

John O'Neill

“Life expectancy is just a number – and I always try to prove the doctors wrong.” From the time I was young, I knew that a double lung transplant was a part of my future – it was just a READ MORE

21

Aug

Erin
Erin

“Just when the caterpillar thought the world was over, she became a butterfly.” After years of unexplained illness, I was diagnosed with a primary immunodeficiency, a genetic disorder that prohibits my body from producing normal defense mechanisms and has caused READ MORE

07

Aug

Mark
Mark

In 2008, I was in a serious motorcycle accident that was supposed to leave me extremely disabled. Instead of crawling into a pit of despair, I decided that doctors would not dictate my future. I joined a gym, lost a READ MORE

05

Aug

Maria
Maria

“A clear conscience makes for a soft pillow.” For several years, my husband and I tried to have another baby, and experienced many disappointments during that time. With every disappointment came the urge to give up, to forget about our READ MORE

06

Jun

Paul

My childhood was never easy. I tested positive for cystic fibrosis at just 6 weeks old, and the complications grew from there. I have been in and out of the hospital my entire life, and have had a number of READ MORE

09

Apr

Mac
Mac

I have gone through difficult times, as does anyone who has cystic fibrosis. In 2007, I was placed on a ventilator because I was going into respiratory failure. Eventually, I received a new pair of lungs in 2009. With determination, READ MORE

11

Mar

Lucas
Lucas

“I will still continue to fight until my last breathe; I believe I have a job to do in this world, and until I reach the end, I have to keep trying.” I was born in Spain at a time READ MORE