Category Archives : FEAR

07

Aug

Frank
Frank

My first two children were born with cystic fibrosis – and I was scared. How could I be a father, a provider, and a loving husband with the possibility of my children’s deaths knocking on my door? Hope came to READ MORE

03

Jun

Haley
Haley

“I cannot fail. And I WILL be the hero of my own story.” For months, I have been feeling under the weather even though I have remained active by starting a Cross Fit boot camp. After a quick hospital stay READ MORE

09

Apr

Brian

I was recently snowboarding – planning to board over 20 foot cliffs. I stopped to think about my approach, to plan my landing, and completely froze in fear. The longer I sat there, the more anxious I became – becoming READ MORE

26

Mar

Gretchen

“Decide that you want it more than you are afraid of it.” I grew up with the mentality that I do not have enough time – to live, to dream, and most importantly, to love. My disease has progressed quickly READ MORE

25

Feb

Cris
Cris

I am on the cusp of being listed for a transplant, and recently had to go on oxygen, so fear is something I am dealing with on a daily basis right now. I have always believed that life is about READ MORE

25

Feb

Josh
Josh

“I’d rather try and fail than fail to try.” Cystic fibrosis is a very individual disease – every patient’s CF is completely unique to them. And it is these differences and resulting complications that scare many people. I try to READ MORE