29
May
I’m 61 from Brooklyn, New York and I’m a cyclist, a double lung transplant recipient and I also happen to have cystic fibrosis (CF). CF is a genetic disease that affects the lungs, digestive system and many other organs in READ MORE
22
May
When living with cystic fibrosis, knowing your mutation is key, but it doesn’t have to be the sole focus of living your life. In fact, it absolutely should not be. If you’re lucky enough to have the right drugs to READ MORE
10
May
As you all know, May is CF Awareness Month. There have been a lot of Facebook posts and talk about how awful CF is, and it is awful. You won’t get any argument from me on that. However, today, I READ MORE
01
May
In The Wizard of Oz, Dorothy and her companions faced a dangerous journey down the yellow brick road… just as people with cystic fibrosis face obstacles every single day. Instead of lions, and tigers, and bears, (oh my!), we deal READ MORE