Archives : May-2018

29

May

I’m 61 from Brooklyn, New York and I’m a cyclist, a double lung transplant recipient and I also happen to have cystic fibrosis (CF). CF is a genetic disease that affects the lungs, digestive system and many other organs in READ MORE

22

May

When living with cystic fibrosis, knowing your mutation is key, but it doesn’t have to be the sole focus of living your life. In fact, it absolutely should not be. If you’re lucky enough to have the right drugs to READ MORE

15

May

Heroes

    According to Miriam Webster dictionary, the simple definition of a hero is “a person who is admired for great or brave acts or fine qualities; and a person who is greatly admired.” This definition doesn’t mention anything about READ MORE

10

May

As you all know, May is CF Awareness Month. There have been a lot of Facebook posts and talk about how awful CF is, and it is awful. You won’t get any argument from me on that. However, today, I READ MORE

01

May

  In The Wizard of Oz, Dorothy and her companions faced a dangerous journey down the yellow brick road… just as people with cystic fibrosis face obstacles every single day. Instead of lions, and tigers, and bears, (oh my!), we deal READ MORE